to babykatibug: I'm happy Amitiza is working for you and hope it continues to do so. It worked for me for a few days in the beginning and I thought my side-effects were much more tolerable than the others I'd read about on here. to jt80: My dose is low (8mcg 2X daily), but increasing the dose for me resulted in such violent headaches and body pain that I was unable to move away from the initial dose. Then I knew what others were talking about. No, it isn't working.
I have made 2-3 posts since February, 2009 re my experience w/irritable bowel and Amitiza. Truly, I am ready for surgery...anything that will finally end this. The abdominal swelling causes my abdomen to feel tender and sore, my clothes absolutely do not fit bc I am a very odd shape rt now (no waist). I was in Canada when this all started and was tested from one end to the other before coming back home: colonoscopy (that the dr was unable to complete), an endoscope, a ct scan, several abdominal xrays and a barium enema. Dr. in Canada put me on a med called Dicetel (not available in the US) that was helping. Dr. here tried a couple of things, the last one being Amitiza. For me it hasn't worked very well (even w/Miralax 1-2 times daily) since the first few days I was on it. Seeing my doc on Friday...he said he can get Dicetel for me from Canada - if my insurance will cover it, I definitely want it.
Drank a bottle of MagCitrate today out of desperation, was vomiting 10 mins later. It did get things moving, though.
I'm wondering what on earth is wrong with ALL of us? This is a terrible way to live. Until I was confronted w/it, I didn't know people were living with this problem at ALL. Good luck to US!!
Post Edited (lupetta) : 3/18/2009 11:37:58 PM (GMT-6)