Maybe some of you have read my posts in other forums. Basically, I had my gallbladder removed in 2002 and suffered the Bile D right away. But I had already heard of Cholestyramine, and so I knew to ask my doctor to prescribe it for me way back then. It worked wonders for me, and I continued to take it for 5 long and successful years right up until just last year (June 2007) when the brand I was taking, Eon Labs, was bought out by another company, Sandoz.
Ever since switching to the Sandoz brand, although it continued to control my diarrhea well (thank goodness), it gave me unbearably bad gas, some nausea, and other GI side effects which have driven me crazy ever since. Last July, August, and September I went crazy back and forth trying different brands of Cholestyramine to see if I could get the same quality I experienced with Eon Labs. No such luck -- I tried Par Pharmaceuticals, Sandoz, Questran Light, etc., and although I was still relieved from the bile diarrhea no matter which new brand I tried, I always suffered lousy side effects. At one point in September I developed chronic sour taste in my mouth all day and a white coated tongue which has persisted to this very day. This has been my latest bad symptom to deal with which has driven me nuts for the past 7 months now. When the tongue began bothering me I switched over to 1 gram tablets of Colestid, which I thought might help, but I still have the effects. I have been on Colestid since September.
I went to a couple of GI docs, two regular GP docs, two Ear/Nose/Throat docs.... and a couple of them thought I had developed Thrush, but most feel this is reflux that's affecting my mouth. I have tried lozenges called Mycelex for the Thrush, but this hasn't cleared it up.
I should mention that I heard about Linda's Calcium plan, and a couple of times I did try to avoid all medications and dedicate myself solely to Caltrate+D (calcium). The first time I tried the calcium was last August for about 9 days (I did not have the white tongue at the time) but while it relieved my side effects of the meds, I still had to battle urgent diarrhea -- so much to my disappointment, I had to go back to the medicines. After I acquired the chronic sour taste and white coated tongue in September, I stopped all meds a second time and went back to Calcium solo --- I tried it for about 5 days and I still couldn't really control the diarrhea.... plus, it did not stop my white tongue...
I have not tried Welchol yet, which is my last Ace In The Hole, in a way...
So I am really lost and am going more and more mental as the months (soon to turn into years) go on. I had such great luck with the Eon Labs Cholestyramine for 5 years; I don't know what happened after they got bought out by Sandoz. And now I don't even know why I have the mouth troubles -- is it reflux, acid, a side effect, dehydration, Thrush, Candida, or worse?? I HAVE to take something to keep my bile diarrhea at bay, but by taking these things I have a terrible quality of life. It is quite a dilemma. I am going to my doctor later today to make him run some more tests just because I need mental relief from the sour taste/white tongue thing. These doctors are all completely useless and frustrating.
Post Edited (Joe9) : 4/2/2008 12:42:04 PM (GMT-6)