HELP!!! ADVICE, PLEASE!! :(
So my GI found a half-liter's worth of bile in my stomach during my endoscopy yesterday. He also said my stomach was inflamed. And NOW I am one devastated, terrified, and confused individual.
I am completely lost and without understanding or hope of any of this. My GI didn't even think it was necessary to do the endoscopy because I'd just had one 10 months ago and everything was fine... *I* was the one who convinced him to do another. HOW IN THE WORLD CAN I HAVE SO MUCH BILE IN MY STOMACH WHEN I TAKE A BILE SEQUESTRANT FOR DIARRHEA EVERY DAY???
He recommended that I take Carafate to coat my stomach 4 times a day, and this is something I am dead set against, but I am so frightened that I have no choice. So, I have started taking the Carafate.
If Keriamon is reading this, the GI is now possibly leaning toward the "slow emptying stomach" thing even though he scoffed at the notion when I suggested it to him last month. Don't you love these doctors? But though we have not discussed it in detail, I am NOT going to take the highly-dangerous Reglan, for reasons I've discussed elsewhere.
Of course, he and my wife and family caution me "not to read the internet!!" about
these problems, but I already have. And it's not pretty. I cannot believe that I COMPLETELY FORGOT to ask him how my esophagus looked - which was the whole reason I asked to do this endoscopy!!! I have to assume that my esophagus is fine (at this stage - but how about
in 6 months??). If anything had been wrong with the esophagus at this point, the GI would have told me, I guess. But I still have a sore throat that's worse today than ever (maybe made more irritated by the endoscopy proceedure itself??).
I've read a lot of horrendous things about
"bile reflux"... that it's almost impossible to control, and that ordinary dietary changes and lifestyle changes will not control it, that only medicines (which I am opposed to!!) and possible surgery (!!!) can keep a lid on it.... but yet, even after meds and surgery, the bile reflux may still return!! As time goes on, it may turn into Barrett's esophagus and then esophagel cancer!!! And this is one of the worst kinds of cancer you can get!!
I am so mixed up. I am supposed to see the doctor again in two weeks.... he's taken more blood from me to run more tests. In the meantime, I am now going ahead and taking the Carafate to coat the stomach, but I am trying to decide what to do about
the Colestid/Cholestyramine I've been taking.... the doctor tell sme to continue taking this for my bile diarrhea, but I almost want to STOP taking those bile sequestrants all together and see if I can make it on my own and deal with some occasional bile salt diarrhea. Maybe those bile sequestrants are bothering me.... but at the same time I am wondering if maybe the problem is that I am not taking ENOUGH of the bile sequestrants in order to soak up all of the bile???? I have asked my doctor about
that, and he doesn't think that's the case, but it's something I am thinking of trying on my own anyway:
During the past 13 months I have actually taken LESS doses of Chloestyramine/Colestid/Welchol because I do not need that much of any of them to simply control my post-gallbladder diarrhea. I mean, it's common sense -- why take a lot of that stuff if you don't need that much to control your bile D, right? Well -- I am thinking of taking more to see if it takes care of the excess bile inmy stomach too.
Oh, I should mention that even though I didn't want to take any anti-acid meds, for the past 4 weeks I have caved in and taken Nexium and then Prilosec at my GI's request. When he says my endoscopy showed an inflamed stomach, I wonder if THESE PPI's are what caused this??? I didn't have any inflammation or any problem on my endoscopy 10 months back when I wasn't taking these drugs. He wants me to keep taking thse, but I am stopping them until I see him again in two weeks.
I am completely mixed up, and depressed. I don't even want to wake up in the morning.
Post Edited (Joe9) : 8/2/2008 4:25:49 AM (GMT-6)