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Regular Member

Date Joined Jan 2007
Total Posts : 34
   Posted 5/10/2007 10:01 AM (GMT -7)   
Well im sorta new to the forum, made a few post back when I had neck fusion sergury.  I have been fighting with IBS-D for a while, planning my entire day around where the nearest BR was.  Only getting short term relief from opiats from time to time.  Doc gave my this drug a few days ago and OMG its almost as if im cured.  I know this is not the case but only going around one time a day for the past 5 days is like so much a big deal for me.  If you have not tried this med I would ask the doc, there are some risk factors with this drug but for me I notice nothing but normal bowl movements.  I wish everyone the best
God bless

Veteran Member

Date Joined Apr 2005
Total Posts : 3269
   Posted 5/25/2007 10:33 AM (GMT -7)   
Hi ky,

I'd love an update... Is Lotronex still doing wonders for you? I hope so. :-)
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Veteran Member

Date Joined Mar 2006
Total Posts : 1451
   Posted 5/25/2007 12:42 PM (GMT -7)   
Lotronix is similar to Zelnorm as it is in limited use since being recalled in the early 2000's. I don't know if you need special requests like with Zelnorm or not but it is not recommended for long term use from what I just read.

Regular Member

Date Joined Jan 2007
Total Posts : 34
   Posted 6/1/2007 6:42 AM (GMT -7)   
Sorry it took so long to reply.  The meds are doing really well, at first I was only on .5 MG twice a day and after the first month I was doing the normal BM for a few days followed by a day of return of diarea (this was still really good because of the 4 years of having all day/everyday)  When I went back he raised it to 1MG twice a day and also putt me on welchol (this has failed to work in past) other than a day or so a month when I get stomach craps (might take a lortab, average 4-6 a month) this med has been a true life saver, I have tried so many things over the years and at times it being so bad I think I took 10 Amodiums in a day.  If you have not ever tried this, and still cant get the IBS-D under control, I would say to for sure find the dock that can give it out.  I believe only a few docs can even precribe it.  Because on the first try it had to be an original script and the thing had a special sticker on it that said my doc was a member of the Lotrinex ??? group, also had to sign a long waiver stating the risk of colitis.  For most there is zero problem with this drug, and it is the bomb!!!

Post Edited (kydiver) : 6/1/2007 8:00:15 AM (GMT-6)

Veteran Member

Date Joined Jun 2005
Total Posts : 2976
   Posted 6/1/2007 7:53 AM (GMT -7)   
Yeah, I think this is the one they recalled for giving people terrible consipation--the kind that needs medical intervention to correct (and yet they got rid of Zelnorm, which was the only thing that cured some people's terrible constipation; I'll never understand the convuluted workings of the FDA!). But if you needed that many immodiums in one day, and still had bouts of diarrhea, I bet this was a God-send for you. People just can't live with D like that--and I'm not talking about "live" as in just quality of life. I'm so glad you were able to even get a doctor that was able to prescribe this to you.

Regular Member

Date Joined Jan 2007
Total Posts : 34
   Posted 6/1/2007 10:35 PM (GMT -7)   
All im saying is I see many post with my same problem, very few ever say lotronex, and only because its been like an OMFG gift from god that I press the issue to try to get it out that this drug owns. Im serious, its like I can go out on a boat for the first time in 10 Years and not worry about having to say STOP!!! followed by me jumping overboard and crapping in the water. Im a 24 year Master chief Master diver (Men of Honor stuff lol) and this IBS has hosed my life and made me hide it with 100 Amodeums a day till now.
You could say im excited about it lol

Post Edited (kydiver) : 6/1/2007 11:39:23 PM (GMT-6)

Veteran Member

Date Joined Feb 2003
Total Posts : 1441
   Posted 8/15/2017 6:50 PM (GMT -7)   

Hope you're doing well.
Very curious about this drug.
Do you have a recent update?
My GI wants me to try this.


Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around.
~Leo Buscaglia~

*Crohns Disease & IBS 1994
*Bipolar & Anxiety 2003
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