Zelnorm might be back...

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Veteran Member

Date Joined Apr 2005
Total Posts : 3269
   Posted 8/3/2007 2:40 PM (GMT -7)   

with restrictions for those with IBS-C or CIC:



Post Edited (7Lil) : 8/3/2007 3:49:31 PM (GMT-6)

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 8/3/2007 4:02 PM (GMT -7)   
Hi Lil,

I saw this too. I guess its going to be prescribed kind of like how Lotronex is today with many disclaimers that the patient needs to sign before receiving an rx. The risks are scary though if you ask me but I know that some people here have said that this is the only thing that works for them. Its just important to outweigh the benefits to the risks.

Take Care
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


Veteran Member

Date Joined Jun 2005
Total Posts : 2976
   Posted 8/6/2007 8:16 AM (GMT -7)   
The last article I read (this was back when they took it off the market--I don't know if they've done any follow-up studies to revise this or not) said that the risk of getting the severe heart damage was exceedingly low. I mean really, really exceedingly low. Of course, people with any kind of heart problems at all shouldn't touch it, but I'm glad they're letting people who have to have it to function get it again. I mean, for some people it's this or a colon resection or outright colostomy, which is dangerous in its own right. Of course, it would be nice if they could find something else to replace it with that has less side effects all around.

Has anyone noticed that they've been pulling a lot of medicines lately due to health risks? I'm wondering why they're not catching these things earlier on in studies. My husband has quit taking Avandia because they're talking about giving it the black box warning. I asked him what was the point in trying to control your blood sugar if the medicine that controls it can mess up your heart just as much as letting it be uncontrolled? He said he didn't know, but he's on two other blood sugar medicines and he's going to get lower carb and start working more around the house on the weekends to keep his sugar in check and stay away from the Avandia. So far so good with that plan.
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