Have they checked your gall bladder with a hida scan? You have too much wrong with you for that to be the only culprit, I think, but pain in your arms and vomiting and D are all signs of it; you could have that on top of something else. "Nothing says you can't have more than one thing wrong with you at once."
Has anyone talked to you about
fibromyalgia, which can explain the joint pains and even the disrupted GI tract? It took them a long time to diagnose my mother with that. Her sister and an uncle have/had Crohn's. Those autoimmune disease--whatever flavor--run strong in families. Even though you may not have UC like your brother, you can still wind up with fibro, Crohn's, rheumatoid arthirits, etc. Sounds like your doctor is already thinking along those lines, but you do need to make sure he's looking at fibro too because even though it's not predominantly a gut problem, it can tear the guts up (just ask my mother).
And has anyone tested you for food allergies? Some allergies are so bad, they can cause your kind of symptoms. Just a note, however. As I understand it, when you get a positive for an allergy on one of those tests, it can be relied upon. However, you can get false nagatives. In some cases this may be due to the fact that you don't have an ACTUAL allergy (which has very narrow criteria that have to be met), but your guts have a non-allergy reaction all the same. This is called having an intolerance. If you can't get the allergy testing done, or everything on it came up negative, you might try an elimination diet to see if anything helps. Some common food allergies and intolerances include:
Dairy (including the protein caesin, which is a frequent additive to a lot of processed foods)
Gluten (found in wheat and some other grain products)
Caffeine (including decaf coffee)
Artifical sweetners (Equal, Splenda, Sweet N'Low, Twin)
Preservatives, food coloring, MSG, misc. pesticides and other chemicals (go organic to avoid all of these at once)
Shellfish and regular fish (some people are only allergic to shellfish, while some can't do them or regular fish)
Sugar (cane sugar, molasses, honey)
You already should not consume any sugar alcohols (mannitol, xylitol, sorbitol) because they are very bad on the guts of everyone. The first five are the most common complaints here on these boards. Most people already know if they are allergic to fish or peanuts or soy, but discovering dairy and gluten seem to take longer. Other things to just avoid are alcohol and carbonation. With your guts, those are good to avoid even if you have a cause for your gut problems that's not an intolerance.
Post Edited (Keriamon) : 8/23/2007 3:18:59 PM (GMT-6)