Hi all, I"m a newbie here but I am way confused and figured maybe somone could shed some light. 8 years ago (Iwas 17) I was diagnosed with Crohns and saw a gi specialist who started me on asacol and stated that I could try taking it only when I had a flare up so I did that and it has worked well for me. No one has questioned it and I have been able to keep it under control (well 4 flare ups a year) for the past 8 years when it was uncontrollable. Now I am an adult and have moved to a different city and have a new gi specialist I have just started seeing. He was confused as to why only taking asacol when I had a flare up worked and that i had never been hospitalized for the crohns so he ordered a colonoscopy... which I had today. we were talking afterwards and said he is unsure as to what is going on since my intestines look very healthy and is sill boggled by the asacol on a prn basis. He is having biopsys done hoping to shed yet more light but he thinks it is ibs.
the symtpoms I get with my flare ups are extreme nausea, no appetite, blood in stool that is typically a little bloody and it is always diahreah, with an elevated white blood count, extreme cramping and back aches.I have never been constipated in my life til just recently which is what prompted me to see a gi specialist since this was a new symtpom. THere are foods I cannot eat,and foods I can eat if I take my asacol prior to...
anyone ever heard of this???