so frustrated just want to do myself in

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New Member

Date Joined Sep 2007
Total Posts : 4
   Posted 9/23/2007 6:29 PM (GMT -7)   
I'm 19 years old and have been suffering with stomach problems for almost two years. When I eat some types of food or large amounts I get a pain right above the belly button and sometimes pains below the belly button. My bowel movements ether are small balls or just half sized regular poos I've been taking fiber supplements and it has been helping with the size and largeness of the poo. When the pain first started I also lose alot of weight about 12-13 pounds. I have know somewhat regulated my weight but still am very skinny.  My concern is the pain. I've gotten a scope only in my month and not in my anu. When I got the appointment with my GI to get a anu scope he told me that it was just a sensitive stomach and not to worry but I still in large amounts of pain. My family has history of stomach problems like chromes, heinous hernia and other issues. My uncle suffered when the same pain as me for 25 years and then his bowels exploded causing him to have sugery. When I have a atttack I usually feel better when I let out gas from my month. Things that helped are ginger tea, it seems to stop the pain and let me fart which takes away the pain as well. I've been taking large amounts of ginger tea instead of antacid which also is hopeful but I've been geting bad migranes everday. I'm on ssri so my concern is maybe the things that i'm taking such as probiotics and large amounts of ginger tea are effecting each other to produce the headaches. I've also had chronic tiredness and joint pain as well as lose of vision. I'm concerned I may have Whipple's disease but I already show my gi and he wont let me have a scope. Ever if I get another appointment I have to wait 6-8 months because of Canadaians health care. I just don't know what to do anymore I use to be extremely active and intense excerise but whenever I try i'm in alot of pain and have to stop. I not sure if I should do a  colon cleanse  or not? Any help would be appreciated.

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 9/23/2007 9:00 PM (GMT -7)   
I'm hardly qualified to give you specific suggestions but one jumped out at me, while reading your post. I would suggest you start a food journal or diary. Write down every single thing you eat, even if it's just 3 M & M's. Date the top of each page and also record details or info if you were stressed about something, had a cold or allergies that day, just for random examples, mention if you ate processed foods or food you prepared yourself. Over time you may see a pattern forming and notice that certain types of food agree with you or others irritate your stomach. If you know something bothers you, avoid it. If you know a specific type food gives you a good or great day, never run out of that food (my magic foods are bananas and vanilla flavored yogurt! I'm never w/o either).

I hope you find the help you need. I also would be very leary of a colon cleanses. They can deplete you of necessary bacteria in the GI tract.


Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 9/24/2007 7:24 AM (GMT -7)   
Make sure that you are drinking plenty of water if you are taking fiber supplements. What some don't realize is that fiber can actually constipate you if you aren't supplying yourself with enough water. Fiber needs water to work effectively, especially the supplements.

If you are having problems with your vision, I suggest that you see an eye doctor as well. Opthalmologists are MDs and can test you for specific diseases as well. Bring your concerns to him/her about your Whipple's theory and most importantly just get a good vision test and make sure that you tell them that your vision has declined.

Probiotics can cause gas in the beginning of treatment or if you have increased them recently so you may want to cut back to see if that is the culprit if that is the case.

I hope you can get some answers soon.

Take Care
Co-Moderator ~ IBS Forum & Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements
Lupus & Diverticulitis flare (Flagyl 500 mg/3, Levaquin 500 mg, Zofran 4mg PRN for nausea, Hydrocodone 500mg PRN for pain)

TJ in Virginia
New Member

Date Joined Sep 2007
Total Posts : 1
   Posted 9/24/2007 10:45 AM (GMT -7)   
I have had bad bowel and stomach problems for at least 30 years, Since Feb. I've lost 80 pounds. (I was obese, now I'm not.) I had to be on a "clear liquid" diet for almost 2 months. I had an EGD/Colonoscopy, many blood tests, 2 cat scans with contrast, and spent a week in the hospital just last month. As a result, we discovered that I am profoundly "intolerant" to all Proton Pump Inhibitors -- Prilosec, Prevacid, Nexium, etc. that I have been taking for the past few years, and kept getting sicker and sicker. My Gastroenterologist said he's never seen anyone who is so intolerant to a whole class of medications like that. My bowel is still extremely inflamed, and my diet is very restricted. BUT I THINK I AM FINALLY ON THE ROAD TO RECOVERY! Stopping the PPI's helped a lot, almost immediately. I can't take any pain meds. They make me much sicker and cause awful nausea and vomiting. When in the hospital, I was vomiting constantly, and they couldn't stop it with the very expensive Zofran, that helps most people. We found that plain old Promethazine stops my nausea immediately. I am taking Librax for the IBS, Levsin for the extremely painful abdominal cramping (and it helps with my slow-emptying stomach), Promethazine for nausea, and occasionally Pepcid or Zantac for any acid stomach, because they're not PPI's.
My message to you is to: go through the GI testing -- it's critical to rule in/rule out other diseases. Keep after your doctors to LISTEN TO YOU. Keep a symptom/food/medication diary, as others have suggested. That too, is critical. One of my problems is that I tend to try to eat more normal foods after a few days without symptoms. I have learned to go slowly. Introduce more normal foods slowly and only one at a time. Then keep track of your symptoms. My GP pooh-poohed my requests for a referral to a nutritionist, but when I was in the hospital last month, I just told one of the nurses that I wanted to see a nutritionist, and one came up the same day. I have a specialized diet sheet that I refer to now, and I can call the nutritionist whenever I have a question.
For me it has been best to avoid all over the counter drugs. I talk to my GI specialist before I make any med changes. It's not easy to get these docs to see you in a timely manner ( I usually have 6-8 week waiting periods before I can get in to see my specialist.) My GP is learing about the management of severe IBS, and that has caused lots of problems, but she's learning, just like I am.
Sometimes it helps to have an advocate assist you when you deal with docs. That can be a family member, a friend, or if your relationship with your doc gets really bad, your insurance company can sometimes help -- I called "customer service" because my specialist hadn't returned my calls after I had left phone messages (during the work week) to his nurse for 3 days in a row that I was in agony and unable to take any food at all, and no one would call me back. An hour later I got a phone call back from my doc. I wouldn't recommend doing that unless you're really out of options in your area, but as a "last ditch" effort, it certainly does get the attention of the doc's support staff and the doc.
You have to keep accurate records of what's happening to you, inform your doc, get the appropriate diagnostic tests, and remember that it's going to take time and patience before you see improvement, then build slowly and carefully on what works for you.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/27/2007 3:27 PM (GMT -7)   
Hi Gav if you have bad pains that you feel like you just cain't cope anymore go to emerg. that's what I did and I had an IBS DX for 27 years . I had a abcess and had emerg surgery and then a few months later a blockage. They found out that I have Crohns .So never feel like your pain is just to be ignored it is real and there is help. Before I had the surgery I went in and got a shot for pain. The scope and CT scans can see if there is other things going on.The ultra sound found my abcess. The surgern said I should of gotten there sooner. Hope this helps lol gail

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 9/28/2007 4:50 AM (GMT -7)   
gav - by all means do the GI workup as others have suggested. In my 8 year struggle with IBS-like symptoms, brought on by having 15 inches removed from my colon and my sigmoid (due to rectal cancer) and my gall bladder out, I have discovered a very, very valuable lesson in life:

We ARE what we eat!

And in TJ's case, also what we ingest (medications). I have had simple antibiotics and vitamins give me diarrhea.

So keep all of this in mind, get your testing done but think carefully what you put in your mouth. Even the simplest Vitamin C or daily pill could mess you up. Could be any OTC med or Rx med. Or possibly carbonated beverages too. A whole host of meds, solids or liquids could be the culprit.

Start that food/med journal. Record every single thing you drink and eat for each day. Even chewing gum or using straws too (might sound wacky to you but both can cause unnecessary gas in the gut).

Wishing you well.


Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/29/2007 10:53 AM (GMT -7)   
Where in Canada do you live? I'm in Alberta myself and inititally the first appointment with a specialist (like a GI) can take 6-8 months, but once you've gone in to see them then from there on out you should be able to book appointments with the same gastro for within weeks, maybe a month at the most.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Member

Date Joined Sep 2007
Total Posts : 4
   Posted 10/7/2007 11:09 PM (GMT -7)   
In Manitoba right know,
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