My new dr may have finally found the reason why I keep getting stones! When he went in to take out my nephroscopy tube, he couldn't because my ureter had closed up with scar tissue. He says I was born with a narrowing of the tube and over the years because the urine has built up in my kidney causing stone formation which in turn has caused scarring in the tube it has finally closed so now there is no connection between the kidney and the ureter.
He is going to try to laser through it next week and put in a larger syent for 6 weeks to keep it open. He's about 75-80% confident it will work and 90% sure I won't get any more stones. I'm not quite sure about the 75-80% part but I like the 90% no stone part. We are going to discuss it more.
This is my 5th dr including a nephrologists and my last 2 besides putting me on HCTZ and Lotensin because my kidneys weren't functioning properly told me I needed to drink more because after my 24 hour urine test I didn't have enough output. Well I always drink between 1 -1 1/2 gallons of fluids a day so this dr said they were way off the mark and should have looked into it further.
I will keep you posted as to how things go, but if this guy is as good as he seems then I will tell you all to do what I did when I couldn't find a dr to help me with my GI problems; be your own advocate and keep looking because there is a dr out there that can help you and things can get better!
I wish you all the best and am looking forward to chatting with you,
spleen/appendix/gall bladder removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)