Posted 6/17/2009 5:46 PM (GMT -6)
Tennis ball is a great comparison. I have a heart condition also so between cardiologist, pain specialist, nephrologist and urologist I feel that way also. My nephrologist is the same way he always says I look good and states where the condition is at that moment. Usually he asks about my pain level and how the PM doctor is treating me. He understands PKD can be painful on many different levels so many things can cause us pain. He was the doctor who gave me the referel to the PM.
I always have flank pain. I hurt when I pee in the AM!!!!!BAD
I take 4 different BP meds for I have Severe Genetic Hypertension (Wonderful genetics..lol). Its never really under control. Last night I was in the hospital the the cardiologist wants to check my renal arteries. Have you had yours checked? He said with high bp and pkd could be a big re-cursor for dysfunctional renal arteries.
No problem on ranting I have done a few of them myself on Chronic Pain forum..lol
I have always had cysts on my kidneys but they never said anything about them. Doctors always said it wouldnt bother me. Well then why do I hurt all the time? There was a time frame where a few of my doctors didn't care to treat patients any longer they just wanted to bring them in and push them out for their paydays. Never really following up on any of them. 2 years ago a urologist finally did a CT scan and found thousands of cysts but didn't think it was a problem even though my mother had PKD.
I then went to another urologist for a 10th opinion. (it seems) He wanted to go in and look around. He realized I was in pain and my bp was out of control. In december he went in and placed a stent in and backed right out of the left kidney without looking at the right one. His finding were impressive.
He entered a cysts when he went in. The fluid was a milky white showing infection. The walls of the kidney was slough or shedding. I had black spots every where along with so many cysts he could even begin to count. Scar tissue was everywhere from so many stones, blockages and stents.
So I've been Dx'ed now for 7 months but have had it active they think for years.
My path of treatment has been long and stressful. Been accused of being a drug seeker and a hypercondrace (? spelling). Now its all on the table we can start a treatment plan.
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all