I thought my kidneys were bad. I have very slight renal failure it comes and goes? They call it acute I still haven't addressed that part yet I'm pretty ignorant on that part. I found out that about 3 months ago. I also have blood and protien in my urine I think that is just the way its always going to be with us.
I take lisinopril, lasix, potasssium, celexa, biostolic, hydralazine, trazadone, klonopin, robaxion, ryzolt (tramadol er), percocet, ditropan, peusdo and a few others I might of missed. So far not to much for the kidneys. My kidneys are just causing alot of pain. The cysts will break or get blood in them. The nerve damage has caused a real big mess in my life.
Yes you can use the statement on your signature its alot of peoples saying..lol Cuz its so true.
You asked if I have found my new normal yet? Not really. My husband just recently changed our vacation plans to florida due to the heat he thinks I wouldn't enjoy myself. I didn't really like that choice he made. I still have a hard time letting go of the things I used to be able to do and take for granted. Even mowing the lawn that I can't do any longer. I do have a positive outlook on life. I'm blessed with a wonderful family who is going with the flow on the changes.
My daughter is doing a bunch of fundraisers for PKD so that she can give them a huge donation in September on the PKD walk. Shes 16 and doing everything from her heart for all of us. So that make me proud which part of the new normal. I don't have much advice on that one but whenever you need to vent or talk about what your new normal might be just holler at me..lol
Right now they are not really treating my kidney's. Its wait and see method. Just check the scans every 3 months for changes and take all my meds. I will start to research more and see what other things I can do for them.
Ok I've babbled long enough..lol
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all