PKD is a genetic disorder. If one of your parents have this disorder you have a 50/50 chance of inheriting it. If you have it one of your parents does who might not know they have it. My mother died her autopsy showed PKD but she never knew.
If I were you I would research, google everything, ask questions on forums. Thats how I found this wonderful site, while researching PKD. My first and second urologist just shrugged my condition off. I finally got the third urologist to go in and look. In the end I was seeing a Nepherologist and going to a pain clinic.
It doesn't matter if your pain is on occasion or all the time. Your body says something hurts that means something is wrong. I would keep on getting opinions until you find a doctor who will listen and research on his own time to try and find answers for you. It took me awhile but it finally happened and thank god it did.
Tonight I will research alittle for you and see what I can come up with. Some Doctors might think its no big deal but this is our bodies our life we should take things alittle more serious.
Chat with you soon
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all