Posted 10/22/2011 5:01 AM (GMT -6)
Vanessa, my situation is a bit different from your daughters, but i had hydronephosis discovered in my body at the age of 16. I had several severe kidney infections and urinary tract infections in a time period of a few months which is very abnormal, so the doctors performed a CT scan and ultrasound. They found that due to a blockage in my ureter that I most likely was born with I had developed severe hydronephrosis which had caused my kidney to grow to 6 times the normal size. I am now 22 years old and the last 6 years of my life I have progressively gotten worse and worse and less and less healthy, I had constant and worsening pain in my side and back, frequent infections, a loss in health overall due to lowered immunity, fatigue, anemia, constant vomiting, several hospitalizations, and worst of all many emotional and mental health problems. During this time I have seen several urologist and tried several different treatment options, which included close monitoring of my kidney function and growth, medicines, and procedures such as a having a stent inserted, which is very unpleasant. After years of the medical expenses, the hassle of seeing doctor after doctor, taking so many medications, and running so many tests but still being unhealthy and in pain the entire time, the conclusion was because it was discovered after so many years I had lost too much function and gained too much harmful bacteria in my body from the hydronephrosis to keep my kidney. I am now 2 and a half weeks post op from having my kidney removed and it has been one of the most miserable experiences of my life. I say all this to encourage you in knowing that because doctors found this in your precious daughter so young and have already taken action look at all she might have been spared from later in life. Enjoy and celebrate in her health.