I know insurances don't want to pay for genetic testing. Which I don't understand that thinking. If you find something before it gets bad you can possibly slow its progression.
I know there is a marker (genetic) test for PKD.
My question is, Do any of you know how much a genetic marker test is?
My daughter has been searching this since my 15 yr old failed his football physical last week with high amounts of protien in his urine. I need to get him tested for PKD. This disease is a 50% chance of passing onto your children. We want to test all three of them but CJ is going to be the first with this test.
CJ has to deal with battles left and right. Also last week he failed his driving permit eye test. He is also blind in one eye. But his good eye has adjusted so well to cover for the other eye that he is one of the best players on his football and baseball teams. He plays for two teams of each all year long. Hes gone 6 days a week doing practices for all of them. Regarding the eye he has to see Dr Wang of the Wang institute on Friday to get a signed approval that his eyes are still fine to drive. With one eye he can see everything but depth perception. If he can't get that signed we have to opt for surgery.
Now he failed his test. He has to drink a gallon of water a day for two weeks then go back in to be tested. If the protein is still there he has to go to my Nepherologist. Scaring me big-time!!!!! It would kill me if one of them had to feel this kind of pain in there life......
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Hopefully NO MORE........ I think I have it all