Hallo, MGLD, please tell me, was your renal decline caused by a Lupus flare-up?
I desperately need to find a specialist who was successful in stopping the progressive kidney deterioration of a patient who had a flare-up caused by SLE-MCTD. I am in end-stage-renal-failure and I have had Methyl Prednisolone-Infusions followed by Rituximab-Infusions but this treatment was not successful in stopping the deterioration of my kidneys. I have had no other treatment. My kidney function now is 9-10% and the typical symptoms of uremia have not shown themselves. Is there a patient who has been treated successfully and could they please contact me urgently. Thank you. Please contact e-mail: firstname.lastname@example.org
Dear Sir/Madam, I need urgent medical help to stop my MCTD-SLE-flare-up destroying my kidneys. A first kidney failure in 1971 I had a biopsy in 1972 diagnosed chron. proliferative Glomerulonephritis/Hypertension. Because I bled very badly I could not have another kidney biopsy. Med.History:1971 kidney failure, coma. 1982: two cerebral haemorrhages with two aneurysms clipped. 1991: CVA-stroke. August 2006: End-stage renal failure. Diagnose: MCTD, SLE, Antiphospholipid Syndrome, Vasculitis, Sicca Syndrome, Sjoegren’s Syndrome, photosensitivity. My Creatinine is 436 and Urea is 20. Potassium, Sodium controlled through diet. I suffer from allergies and drug-intolerance. I would be grateful to find a specialist who can assist me medically to stop my SLE-flare-up destroying kidneys further. I was informed there is no specialist in MCTD/SLE in UK to medically assist me. No Insurance Company insures me with my medical history. Please advise. Thank you very much.