I want to Welcome you to HW. I'm sorry its under these circumstances. We are all here to help you through anything even off topic so sit back and enjoy some new friendships.
Onto your post now.
I will have to say that I fully understand where you are coming from. I'm sitting in the same boat as you. I stress alot over dialysis!!! I'm on the fence also with blood work. I get the muscle twitches also but only on occasions. I deal with pain on a daily bases with my PKD. Over the years with all the surgeries, stones and infections I have gained alot of scar tissue so I have nerve damage throughout the urological system.
My husband is a logical thinker and a very strong man so he leads in making alot of my choices when it comes to my kidneys. No hes not a control freak he is being my support system, the support I need most is for him to take the lead. I get so scared and frustrated at times. I would chicken out on any procedure..lol I don't want to quit working and dialysis will do that for me.
So MJLD is so very right. Looking at it in terms of logic helps so much. The longer we go without dialysis the more damage we will develop in our kidneys.
Your posts seems to lead to when should you? Well thats up to you and your husband alone. I would say go ahead and start but then I'm still on the fence so my opinion stinks right now..lol
I'm also like MJLD my kidneys go can get better. It changes all the time, my creatine levels. I have alittle more time to make my choices on dialysis.
Please keep us informed and please tell us how your doctors appointment goes today. Hey that reminds me I have one also at 11 am. I knew there was a reason for me sitting down to catch up on posting this morning...lol
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all