Hey Judy! Thanks for the reply! I had acute kidney failure in January due to lupus and they have been treating me with cellcept and pred. since they have been bringing down the pred, more blood and protein are leaking and my kidney function is starting to go down again. Cellcept isnt doing anything for my joint problems either. I have been emailing my rhuemy and she is gonna talk to my nephrologist about starting it. He is hesitant because of my age but agrees something needs to change. I go on the 30th to find out if we are switching to Cytoxan. When you were on Cytoxan, how did it treat the joint pain associated with Lupus for you?
What treatment are you on for your kidneys now? Do they have you on lisinopril for the protien? Currently I am on 40 mg and its still leaking but it has helped greatly with my BP! If they have you on it, does it help for you? I know Bill says its the number 1 treatment...it helped to begin with for the protein or maybe it was the pred that helped!
What stage are you at? When I had the biopsy they said I was stage 3, pushing beginning stages of 4. I really don't know what that means. Is it true it is better to be at stage 5 than 3 or 4? If so, how?
21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel
Ultram, Prednisone, Cell-Cept, Lisinopril, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C
The Old Normal is no more so I and we have to find a New Normal...