I'm actually going to Cedars-Siani in LA on August 26 for my appoitment. Although I live in the Chicago area, my insurance will cover an evaluation at Cedars-Sini. I'm not sure how the program works but I'm going there to find out. I know they do some desensitization programs in my area but from what I understand, Cedars is one of the better centers.
If I qualify for anything, I could take FMLA from work and my daughter lives in LA so I could stay with her. I know it may sound extreme to go that far, but I'm willing to check out anything that could possibly make me eligible for a transplant.
I'll keep you informed. Thanks for your reply.
52 year old female
Diagnosed with PKD 1995 (Wow! Time flies!)
Inherited PKD from my dad
Not currently on dialysis