That is awful Judy. I am so glad you got the needed help in time.
When I started feeling bad last fall we thought it was my Crohn's flaring so my GI ordered a CT scan and a small bowel follow through. The resuts showed that it was normal for someone with PKD and having had a bowel resection. At that point my neph said he thought my pain was my kidney cysts and that there was nothing more I could do about
it unless I wanted to go on pain meds. The pain isn't unbearable so I opted to grin and bear it.
Now it's hard to tell what is my Crohn's and what is the PKD. It seems when I flare that the inflammation must aggravate my PKD. So now I am working on getting my flares under control with some new meds. To tell you the truth I am just tired of being sick. The worst part is the fatigue and trying to work and take care of my family.
I will call my sister tomorrow and see if she can recommend a new neph. It is really tricky because the doc I have now is a family friend and also my daughter's neph. I know she won't want to change.
Thanks so much for you advice Judy.
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril,