Posted 9/29/2009 10:33 AM (GMT -6)
I was told at my last nepherology appointment that cysts will cause pain. The bigger the more pain. Yes I have researched PKD very heavily and the kidneys can and will over time mutate. The cysts will acually take over your kidneys and change there size and shape which causes pain. If a cyst breaks which is comon and blood enters the cysts it will also cause pain. I have a mass attached to my Left kidney that causes me alot of pain. I chose not to have surgery yet. Scarring will also cause more pain and I've had my fair share of pain.
So yes Kidney cysts if large enough can be observed on a physical exam. (swelling)
Prednisone will not help with the pain. If the mass was inflammation based it would but cysts are fluid based.
If the mass is attached to the kidney (even as small as 7 cm) it can be drained which could relieve your pain. The only thing that relieves my cyst pain is pain meds or whenever I agree to get it drained but then it could be more then one causing the pain so I don't know how they would decide which ones to drain. I have hundreds of them.
I so feel for you. I so UNDERSTAND about the conditions trying to fight for control. I have CHF and PKD and they both aggrevate each other and found out each causes the increased speed of progression for both conditions.
Do you feel like I do at times when you have two different doctors both sort of on the same page but not really understanding what the other causes the other. Or if what your feeling it connected with one or the other??? I get so frustrated. That right now I'm taking a break from them. I know both conditions are always going to be there. So I take my meds and for the next 6 months I am not going to worry about all the side effects just go to the pain clinic. But I will start again the next round and ask about other things that are starting.
I also want to say that scans don't show everything. I had tons of them but when I had surgery back in December they found more issues.
I gotta go to work but I will check for a post from you when I get home at 9 tonight.
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........