I am dealing more with my Crohn's than PKD right now. I tried to take new meds, it is acutally an organ anti rejection med, and became ill with flu like symptoms and swollen glands. My primary doc said she wasn't sure if it was from the new meds or if I had a virus so I stopped taking the Aza and now I am taking Cipro for a couple weeks and then going to try again next Monday. I am also reducing my prednisone 5 mg a week to see how I tolerate it.
I also have to have hernia repair surgery, but I am going to try to told off until the summer when I am on break.
I am really nervous right now because I am on these drugs to suppress my immune system and just today there was a case of h1N1 in the classroom beside mine. We sent 4 kids home today with fevers so I know there will be more confirmed cases. Please say a prayer for these kids.
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.