Hi everyone I have a couple of questions. I have known my husband for over a year (we got married in aoril this year and before that lived across the hall from one another) when i first met him he told me he had damaged kidneys and he was on disability for it but could not remember the name and just told me it was very rare.Last summer he had a couple of problems but his nephrologist told him his kidneys were holding his own
Well the reason he doesn't have much info is because basically his mom has always had a foot in his treatmen and she's a real piece of work(stolen money from him,lies, yeah she's not in our life anymorea) She had even told him not to get married or have kids because he was going to die. He is a very sweet trusting man. His mom and most other people in his life have always used him and lied to him and he's none the wiser. (mom always had him in special ed classes growing up even though he didn't need them he's very smart and she has used him as a way to get state aid)
anyways I've been sick with chronic pain since march and we moved in janruary so he hasn't seen a nephrologist since last summer. Finally he got ahole of his old dr about who he should see down here. Like I said he has always just said he has damaged kidneys and he couldnt remember the name of what he had. So I talked to the office staff and asked what his diagnoses is and he said it was chronic kidney disease stage 1
Well thats not as rare as I've been told by his mom. There is a lot of info also on it. he has had this for about 10 years and is on diablitly for it.The dr that diagnosed him put him immeadiatly on psych meds because he thought that my husband would get depressed when he found out what was going on.
So my main question is for those of you with CKD what is your lifestyle like? I've read a couple of posts and it seems so contradictory to the care he has recieved. I know some of you are on a bunch of meds whereas he is only on 10mg of Lisinaprell (sp?) he has been told that his righ kidney is so damages that one bad sneeze could burst it
he has a dr appt in 2 weeks with a new dr. i have a feeling that this dr may move him to the next stage as he has recently gained over 50 pounds, has had no energy, and been very moody. he wont tell me if he's in pain because he doesnt want to worry me with my problems but I can tell when he is
I wont be able to go with him because the appt is 45 minutes away and i can barely sit in the car for 10. So yeah I guess I need to know what he should shouldnt be eating, things that are good for him, things i should be looking out for you know general lifestyl questions.sorry for the typos but i'm typing in the dark lol
the dr told him he wouldnt even be alive 10 years but yet i see that ckd stage 1 can be very managable. what meds are you guys on? what is normal med wise to be on? Thank you so much if you read all of this and extra thanks if you took time to answer. I'll be in and out of this board