Kidney Failure.......Dialysis

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New Member

Date Joined Oct 2010
Total Posts : 1
   Posted 10/5/2010 8:03 AM (GMT -6)   
Hello, My name is Jerry, i have been living with two chronic illnesses, End Stage Renal Disease and Polymyositis. I would like to share my experiences as a renal patient. In 1998 i was diagnosed with kidney failure. i was devastated. After my first dialysis treatment, i remained in the hospital for the next 33 days ( dialysis complications ). Due to financial strain, my family and I decided to move south. I later learned to live and love who i was. I began to network with people with chronic illness, psychologically this was a blessing. I received a kidney transplant in 2005 while living in Orlando, Florida, unfortunately my transplanted kidney failed in February of 2007. Instead of deep depression, i felt blessed for the break from dialysis. With my transplantation experiences, my next transplant will be a successful experience and journey. I know dialysis can be a rough road mentally and physically, but you must learn to love who you are and love what dialysis does for allows you to spend more time with loved ones and gives you time for a possible transplant. For those who are not able to get a transplant, living healthy starts from the mind, again love the NEW you, and share what your experiences are. TRY NOT TO DRINK TO MUCH FLUIDS. Bless you all.
If you want to share experiences or just talk please email me*
Jerry D Paige

Post Edited (plzerone) : 10/5/2010 7:20:27 AM (GMT-6)

Lady F
New Member

Date Joined Oct 2010
Total Posts : 2
   Posted 10/22/2010 7:36 AM (GMT -6)   
Hi Jerry. I was researching something else, found this site and your post.

Thought I'd like to share that we have kidney disease run in our family.

My son's kidneys failed when he was 15. He had home PD dialysis until he went down with appendicitis and had to go on HD.

When his kidneys failed, which although was not unexpected (we have Alports Syndrome), happened so quickly it took both us and the medical profession by surprise.

My son's take on the whole thing? He was more interested in how the machine worked than anything else!!!

He remained upbeat about the whole thing. The time he spent on his machine which was evening/night, we always had his friends come and sometimes even stay over. Being on dialysis didn't stop him doing anything.

He played football (the UK kind - we're in the UK), climbed trees - even abseiled down the side of the hospital to raise money for kidney research.

He will be 24 years old next month and his new kidney, kindly donated by my brother who escaped the disease (it's a genetic thing) will be two years old on 5th December smilewinkgrin My brother is truly a wonderful man.

The kidney was an excellent match so my son has hardly any anti-rejection drugs to take. Merely 5 in the morning and 5 at night. He has had no side-effects either which has been brilliant.

He was very lucky while he was on dialysis because his kidneys did keep some residual function which enabled him to drink more fluids than many other dialysis patients. He did have a very poor appetite though and sometimes getting him to eat was a nightmare. Since the transplant, he has certainly made up for that and eats us out of house and home.

To make you smile here's what happened on the day of the transplant.

As there was nothing I could do except sit and wait, bite my fingernails up to the elbows, it was decided that I should go to work as normal.

So, there I have my son and my wonderful brother both in hospital. At lunchtime I get a phonecall from my daughter who lives in Scotland. She was expecting a baby at the time.

My daughter informs me that I now have a second grandson. The news didn't sink in straightaway and it took a couple of minutes to finally register.

So, now I had not two but three members of my family in hospital.

How many people can say they had three close family members in hospital at the same time and FOUR come out smilewinkgrin

What a day the 5th of December 2008 was. I don't think I've recovered from it yet LOL.

When I went to the hospital to visit my son and brother, although they were still both groggy from the op, I was able to give them the good news that one was an uncle again, and the other a great-uncle. Put a smile on their faces.

So far, my grandsons have shown no signs of the disease,

My son is now restored to health and has a future to look forward to, my brother is back at work but looking forward to retiring next year and my grandson is wreaking havoc as two year olds do, driving his parents up the wall.

How long my son's new kidney will last, that we don't know. He is always aware that one day he may need to go back on dialysis but in the meantime is enjoying life and his attitude to it is very similar to yours.

Don't know if you know but they are experimenting with an artificial kidney which can be placed inside the human body and does the job of the kidneys. Seemingly it's made out of silicon and uses the body's natural blood flow to work so won't need much maintenance. There was an article in one of our newspapers a few weeks ago about it. They think it will be so good that transplantation may become a thing of the past in a few years. There would be no need for anti-rejection drugs either with it.

Since I too live under the threat of kidney failure (yes, I've got Alports too but it's a disease that affects males more than females so hope I don't end up with ESRD but by saying that, it killed my grandmother in 1934 - couldn't do anything for renal failure then) this device is a very hopeful thing and I hope they manage to perfect it.

I wish you all the very best and hope you get a new kidney that will last you many, many years.

Keep smiling and never, ever give up hope.

New Member

Date Joined Jan 2011
Total Posts : 2
   Posted 1/28/2011 12:23 PM (GMT -6)   
Hello, I just got a call from my dads nephrologist last week that he is in stage 5 kidney failure he is 59 years old. Doc. wants him to get a fistula put in in th next couple of weeks. his GFR is 15 Creatanine is 142 I have three other sisters, I am 37yrs old and have a younger sisters are twins as well they are 22 yrs old. there is always one person in the family that is the incharge, and I have always been this person. i am married and have two children. I feel so scared. I calm my anxiety by getting information, as much information as I can. I called the Kidney foundation and they sent me a great packet. My dad has been unemployed since feb. 2010 and unemployment sent him to school, he was so happy and excited but now I don't think he's going to be able to continue, it stresses him out alot...but his unemployment check depends on his attending school. He did apply for charity care at a great hospital and was approved, we've confirmed they cover the fistula and dialysis, my dad seeems like in denial somehow, when we had a family meeting and showed him his results, he was SHOCKED! He was a smoker for many years, and we have begged him to stop and i don't think he has taken this seriously until now. Now he had to stop cold turkey, and being that he is totally non verbal I have no idea how he feels, but how could one not feel scared :(. he has all of our support, and all we ask is that he takes care of HIMSELF, follow doctors orders, follow his diet and take his meds (which he stopped for a month without telling anybody) :( clueless!!! he went for bloodwork during that time and perhaps that's why his results looked so bad. Dr. called in Kayexalate?(sp)? and told him to start his bp meds immediately which he did and his creatanine levels went from 146 to 142 so she wants to retest his blood again in a week. but still feels the fistula needs to be put in ASAP. My sisters are taking him to laser accupuncture this evening to help him with withdrawl symptoms from smoking. He was actually born with Kidney problems but I know his lifestyle hasn't helped at all. I'm glad I found this website. I think his wake up call has arrived and we are all so confused and scared but keeping it together for now. I have no idea what to expect and that's so scary. thanks for letting me vent :(

New Member

Date Joined Mar 2011
Total Posts : 1
   Posted 3/17/2011 10:56 AM (GMT -6)   
I have a question, my mother in law is on in home hospice care and her doctor says she has already experienced kidney failure but her depend is wet is this really kidney failure ? we are new to all this that is going on . she has been with hospice care about 1 week. we just don't like to throw all these questions with her nurse because she seems very "short " about answering. can anyone who is very familiar with kidney failure help us out. please explain kidney failure if at all possible and what to expect next, she suffers from CHF[ congestive heart failure} MUCH THANKS !!

New Member

Date Joined Jun 2011
Total Posts : 4
   Posted 6/26/2011 10:01 AM (GMT -6)   
  your mother-in-law is with hospice care and her DR. say she is experiening kidney failure but you states her depend is wet this may be because when a person is dying ( she's with hospice so I'm assuming this is why) the body muscles relaxes as the body starts to shut down gradually,no control. So your mother-in-law isn't naturally peeing but it's because of the state her body is in and the process of shut down.I just noticed the date of this post and hope this helps or hope it may help someone who reads it in the future. If your mother-in law has passed you have my condolences.
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