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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/7/2010 1:41 PM (GMT -7)   
Hi All,
 
I've been on here for my UC and there did not used to be a kidney section. I am glad there is.
 
If there is anyone that has MCD and wants to share what worked for them or ask me any questions please do.
 
I've had MCD since 2000, was not diagnosed until 2007 and unable to reach remission, 1 protein in the am and 3 in the PM.  I'm basically on Lisinopril and Diovan, I have pretty much been on all the standard drugs.
 
Hoping to start a family next year (just turned 35) and my Dr. is very supportive, though my UC is flaring up.
 
Take care,
Beth

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 10/8/2010 3:59 AM (GMT -7)   
Welcome aboard Beth. I am not familar with MCD but I am sure someone with more experience will be along soon. I do have Crohns and UC so I'm not totally in the dark. I hope you can get your flare under control quickly.
Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996

Bowel Resection 2006, Now on Asacol, Imuran, Folic acid, B-12 injections and Enalapril.

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 10/8/2010 4:50 AM (GMT -7)   
What exactly is MCD?
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/8/2010 7:41 AM (GMT -7)   
Thanks for your replies.

Here's a good link for MCD: http://en.wikipedia.org/wiki/Minimal_change_disease

basically my kidneys are not filtering proteins into my blood stream and it comes out my urine, my Neph says it's like I have an 8 cylinder engine going 80mph but I am only running on 4. I'm lucky that my bun and creatinine are good and that I will likely not need a transplant (that's more for FSGS).

This is another kidney site I go to: http://www.nephcure.org/

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 10/8/2010 6:26 PM (GMT -7)   
Oh ok! Just had not heard it abrevated before. What dose of lisinopril are you on? I know that is one of the main drugs used to treat protein in your urine. I am glad your bun and creatinine are doing well, that is a good sign. How long have you had MCD???
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/10/2010 2:39 PM (GMT -7)   
lol, I am so used to just saying MCD. I'm on 20mg of Lisinopriol 1xday and 80mg of diovan 2xday. my bp is about 95/65.

I was dx'd w/MCD in 2007 but in 2000 I began to have the swelling (no Dr's could figure out why), I believe it was a reaction to the sulfasalazine that I was on for 7 years until my dx. I also have a thin basement membrane in my kidneys (it's likely familial as my mother, brother and sister all have blood in their urine. My neph thinks that is why I can't get into remission.
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