I don't usually visit the Kidney forum but instead I am on the Fibromyalgia and Chronic Pain forums. But, my son-in-law was recently diagnosed with PKD and he has a similar problem too. They found the PKD when they did an MRI for bulging disks that are causing pain problems. So determining what pain is from which I imagine is hard.
You might try posting this on the Crohns forum to see if you find others who would have more insight on the problem.
Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
"Gravitation is not responsible for people falling in love." Albert Einstein