Loin Pain Haematuria Syndrome (LPHS)

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Allys
Regular Member


Date Joined Nov 2005
Total Posts : 184
   Posted 3/11/2011 3:47 PM (GMT -7)   
Hi, I have LPHS, a rare kidney condition that causes severe renal colic type pain often requiring huge doses of opiates. I have had it for 10 years & learned to live happily with it. Anyone wanting info on lphs please contact me on alison.banister@ntlworld.com

Oceandale
New Member


Date Joined Mar 2011
Total Posts : 3
   Posted 3/25/2011 5:46 PM (GMT -7)   
Hi Alison, haven't checked my email yet to see if you replied to my last repy (long winded) to you on LPHS and my name etc. I just found this site through google search for something else and have just aslo registered.

I would be interested to know how you live happily with this disease.

Also I do have some happy days though never pain free. Thankyou also for you email that you sent that showed that I am truly not alone and should not be shut down to speak about it. It's like how does one understand unless one has walked a mile in my shoes.

I will look up the web site that you posted in your comment.

Take Care,

Oceandale, that's name that shows in comments etc. as not allowed to use real name they said. I'm the one you asked about the name multiplicity.

Ciao

Allys
Regular Member


Date Joined Nov 2005
Total Posts : 184
   Posted 3/26/2011 8:52 AM (GMT -7)   
Hi. We have made contact via Facebook & hope you feel happier now you know ur not alone.
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