Kidney Stones Again!!!

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Jim is sick
Regular Member


Date Joined Mar 2010
Total Posts : 118
   Posted 3/14/2011 10:06 AM (GMT -7)   
To the point...
I have a 2mm x 3mm stone that is somewhere between my kidney and the strainer. It was borne (escaped the kidney) February 17th. It's going to be a month this Thursday. Although I have no pain now, the initial pain was level 10 and lasted 7 hours! How long can I strain my urine and wait for this sucker to come out? My doc wants to rush in and get it. Been there before. The surgery was a nightmare... 
 
The last time...
I'm 49, 5' 8" and 160lbs. I had a kidney stone about 6 years ago. It was terrible. I woke from sleep about 11:00pm with terrible stomach pain. Went to the bathroom and sat there thinking this feels like a bad case of diarrhea. The pain got worse and worse. I threw up a couple times and passed out once on the bath room floor. I struggled with the pain until 4:00am. Asked the wife to take me to the ER. They gave my two doses of some pain med, and it did nothing. They gave me two doses of something stronger and I was able to just cope. The did a CAT scan and saw the problem. They sent me home and I saw the urologist later that day. He gives me two pills and tells me to go home. Asked for pain meds, was told they do not prescribe this for kidney stones. The wife has RA so I took some of her Vicodin, but it wasn't strong enough to allow me to even sleep. The following day I was back and we went to the hospital for removal surgery. This is what I remember. I woke with a terrible urge to pee. No one was by my side. I couldn't open my eyes. I remember saying "Help me, I have to peee! I released and blood and pee went everywhere. I wasn't expecting the pain. It was unbelievable. I didn't know it at the time, but I also had enlarged prostate and it made everything much worse. So I flunked kidney stones. The doc said he put in a stint, and he could not find the stone...
 
This time...
This time I also was awakened at 11:00pm with the same level 10 pain. Threw up a bunch of times. I again waited for 4am as the wife is unable to drive too soon after going to sleep due to night time meds... and Went to the ER. They refused to give me anything for the pain. They insisted they needed a urine sample first. I told them I'm not peeing at these pain levels. I was crying like a little girl. They finally gave me something that did nothing at all, then they gave me Tramadol I believe. Within 2 minutes I was able to compose myself, and finally pee. They saw some blood in the urine and decided it was time for another CAT scan. They tell me it is a 2mm x 3mm stone. However this time the pain did recede. In fact I have had only a single 5 minute stretch of pain that was level 6. 
 
This time we were able to get the doc to prescribe 20 pills of the Tramadol. If I'm going to be forced to go through this kind of pain I ain't doing it cold turkey no more. This is just plain physical and mental abuse by the medical community. When I tell people what I have gone through I jokingly say "It's like bullet to the head, or go through this... I can't decide" but it's not funny...
 
And yes I have PCa to add to the fun!...
48, 5' 8", 210lbs, 160lbs
8-7-09, 3.22
11-13-09, 4.25
2-12-10, 32 cores. 3 reveal PCa, 10%, Gleason 3+3=6, T1C
12-6-10, 3.77
Current Treatment: AS, next appt. Jun. 2010. No meat, no dairy, lots of fruits, nuts, veges.

Preferred Treatment: I just want someone to harvest my immune cells, genetically engineer them to fight my prostate cancer, and then infuse them back into my body.

Post Edited (Jim is sick) : 3/14/2011 11:15:16 AM (GMT-6)


LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 4/21/2011 8:12 PM (GMT -7)   
Why aren't they doing lithotripsy?; perhaps you need a new urologist. There was no question with mine, it was scheduled fairly quickly; unfortunately, 1 year later I have another one on top of a nasty UTI; I see my Dr. next week.
By now, I hope you've gotten some relief.
Janice

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/1/2011 10:48 PM (GMT -7)   
I think an immediate trip to a new urologist visit is very important. I too have kidney stones--so many in my right that the urologist can't get them all. A lithotripsy failed b/c they are so mushy (mostly uric acid). Turns out I have a host of issues that are nephrology-based. But I had to start somewhere. On the urologic side, we are replacing my stent every few months. Good luck. But please, see a urologist immediately. You shouldn't have to play guessing games with pain killers.

lizziepm
New Member


Date Joined Apr 2011
Total Posts : 7
   Posted 5/2/2011 11:42 AM (GMT -7)   
I agree with the other posters.  Get a new urologist.  I had a kidney stone attack last Feb. 2010, had a stent put in and it was blasted into smithereens.  I also got oxycotin as a pain killer -- no questions asked!
 
Actually, even before I went to the hospital, I took Tylenol with codeine in it (prescribed by my family doctor as a precaution to kidney stone pain).  I have had many run ins with the darn things.  I did my daybook (I was teaching at the time -- now retired), went to the hospital and from there, things got taken care of.
 
You shouldn't have to fight for pain medication especially when it comes to kidney stones.  Taking pain medication is not going to affect the results of the CAT scan if they're looking for stones.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/29/2011 8:19 PM (GMT -7)   
I had to have an ileostomy due to an irreversible colon and rectal injury from what turned out to be an unneeded surgery. From the unneeded surgery, I also developed dense adhesions on my small intestine so did not have the use of that for 7 months. Not being able to eat, gain nutrients, or pass waste, I was going to die. Had to see 11 docs over 13 months at 7 hospitals before I could find one who did the best that could be done and lysed (cut) dense adhesions off my small intestine and a permanent ileostomy (I pass stool out of small intestine into a bag).

People with ileostomies stand a 20% greater chance of kidney stones than the normal population because we lose so much water in our stool. It is mostly liquid. To prevent stones we are supposed to drink 3 quarts of water per day and pee out about 2 quarts. Orange juice and lemon water are supposed to help us. So far so good and I have had this ileostomy for 4 years. BUT in addition to worry about adhesion reobstruction (which may or may not occur) I also have to worry about kidney stones. I am 55 and in otherwise excellent health.

Tell me what is the protocol for getting the correct treatment for kidney stones if I get one. And what is the deal with Jim not getting pain meds. Kidney stones are known to be the most painful condition next to being in labor or worse. What gives with his doc and his hospital. How does one insist on effective pain meds. Good luck to you all. I hope I don't have to be on the kidney forum too. But what diet do you follow to avoid all this. I hear cut down on oxalates and drink a TON of water. I am so full of water I have no appetite for food. Thanks for any info. Sincerely, Rosemary

Bruinsfan
Regular Member


Date Joined Sep 2011
Total Posts : 82
   Posted 9/11/2011 10:05 AM (GMT -7)   
Wow...I am sorry you all have endured that pain...I too am having kidney stone issues...I went to the ER March 2010 with one which must have passed but I went back to the ER a few weeks ago and found out I have multiple stones in both kidney stones...they say all are small enough to pass on their own...my question is do you guys feel sick like you have the flu sometimes? i can feel when they are moving because of the sharp horrible pain...but does chills and a flu like feeling go along with it?
42 year old female diagnosed with Crohn's disease 12 years ago, progression in disease in past couple years, only taking amitriptyline currently, in past have taken prednisone and pentasa, lots of kidney stones recently

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 9/12/2011 9:29 AM (GMT -7)   
I have fibro, Ra and have had lots of kidney stones. I really cannot say what causes the chills and flu like feelings because anyone of them could. I have had severe pains, just an uncomfortable ache, urges to use the "potty" and have vomited uncontrollably. Stones can do funny things and, of course, can be very very painful.
If your stones are small and could pass on their own you may be one of the lucky ones? Maybe. One, most stones only cause pain when they are moving. So, the smaller ones will/can cause more pain because they can pass. two, stones can grow. If you should experience severe pain that does not seem to move (as in stone passing thru ureter) then you may have a stone trapped. Some can/ will grow or become odd shaped. I had one that went from a 2.2 to a 10.5 in a matter of just a few months. Needless to say, it could not pass on its own.

On the bright side, some pass stones and never even know it. Hope this will be your case. keep me posted on how you are doing.
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

Bruinsfan
Regular Member


Date Joined Sep 2011
Total Posts : 82
   Posted 9/13/2011 4:02 AM (GMT -7)   
Hi mscrowbar...wow...I guess I didn't realize how much of a pain this things will be...they sounded like it was not big deal when I left the hospital and I followed up with my primary and he didn't act like it was a big deal either...it is scarey enough knowing they are in there...this is just another concern I have with the crohn's disease...thanks for the info
42 year old female diagnosed with Crohn's disease 12 years ago, progression in disease in past couple years, only taking amitriptyline currently, in past have taken prednisone and pentasa, lots of kidney stones recently...by the way...GO BOSTON BRUINS!!!!
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