New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

down4thecount
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 4/27/2011 9:41 AM (GMT -7)   

Hi. I have been dealing with urine retention for about 3 years, and in that 3 years I have been to 3 different Urologists. The first one said I would be on dialysis by the end of the year (that was in 2008). It’s 2011 and no dialysis. The second had me sign a paper which basically stated that if I do not do as he says, I will die of kidney disease. Well, I may die of kidney disease whether I do what he says or not. The third is the only Urologist who has even attempted to find the cause of my urine retention. I may not be too happy with his methods, but at least he is trying.

I also need to mention that I have only one functioning kidney and, according to my Nephrologist, I am in stage 3 kidney failure; however, I have been stable for the past 3 years.

In the course of the past 3 years, even though I was retaining urine (sometimes as much as 1700cc), I always seem to get the urge to go and would go to the point where I thought I was emptying. It was obvious that I wasn’t, but I felt fine; until April of this year.

On April 7, 2011, my Urologist put in a Foley catheter and put me on Urecholine (50 mg every 6 hours) for a two-week period to see if my bladder would strengthen to the point where it would work on its own. Two weeks later I was worse than before I had the catheter. I was no longer getting the urge to go and ended up having to self-catheterize. When I went back to my Urologist a few days later, it was decided that the two-week period was not long enough, so in went the catheter again…this time for a month.

I have read many of the posts on this forum and notice that so many people have spouses, family, and/or friends who are there for support. I do not have any support. I do not have a spouse; I live alone. I have family (siblings), but I just get the impression they do not understand or really care all that much. Friends…well, they are not very supportive. They are there to tell me what I SHOULD have done instead of listening to what I have to say.

Maybe my decision to follow the Urologist’s advice was not the greatest decision I’ve ever made, but it was MY decision. It was either try the catheter/medication combination for a month or self-catheterize for the rest of my life. Right now, that is not an option.

My Urologist keeps saying I’m too young for this. I’m 51 years old and am still hoping to find someone to spend the rest of my life with. But who wants someone who is “broken”? This is why I put my trust in my Urologist and hope for the best.

I supposed I’m writing this more to make myself feel better…to vent. Maybe I’m looking for someone to say “I understand”, since I really do not have anyone to speak of in my life with a shoulder to cry on. I was unsure where to post this…under “Kidney Disorders & Diseases”, “Depression” or “Anxiety – Panic Disorders”. They all fit the situation.

Thanks for listening.

John


appreciate2011
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/26/2011 6:33 AM (GMT -7)   
John, Why not join a support group in your local community. That group have compasion and is caring because they understands where you are and where you are coming from. Some meaningful friendship and support lifelong may be formed out of the people you meet there . Maybe someone that's looking for more  than friendship may form and you'll have something in common. Have a wonderful DAY!!! turn

Post Edited (appreciate2011) : 6/26/2011 7:40:32 AM (GMT-6)


down4thecount
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 6/27/2011 9:08 AM (GMT -7)   
Hi appreciate2011,
 
There really aren't any support groups in my local area. I've looked into that. I would have to travel a ways and it is difficult to do with the anxiety. I keep hoping that something will "pop up" in my area, but nothing so far.
 
Thanks for the words of encouragement. Much appreciated.
 
John
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 17, 2017 1:03 AM (GMT -7)
There are a total of 2,906,380 posts in 318,949 threads.
View Active Threads


Who's Online
This forum has 158286 registered members. Please welcome our newest member, iiss99.
212 Guest(s), 0 Registered Member(s) are currently online.  Details