Burning and Pelvic Pain Bad...

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Regular Member

Date Joined Apr 2011
Total Posts : 463
   Posted 6/15/2011 3:01 PM (GMT -6)   
I'm not sure if I'm on the right thread site, but have been struggling with bladder problems since 2004. In May of 2004 I had a abdominal incision with removal of Uterus and Bladder lifted + held with mesh. Lasted for a couple years and then began having problems again. Pain in pelvic region, pressure, frequent urination and burning. Negative UTI''s. In 2009 things got worse and colon went thru vaginal wall and the bladder and colon came out of vagina. All pelvic muscles were not able to support things inside (caused from having 8-pregnancies, 7-births). Including Bladder had grown outside the mesh causing a bulging sack so was unable to eliminate urine. Also Rectocele. Then had a Pelvic floor lift including Bladder fixed.

I am still having bad burning both when I urinate or not urinating. Pressure and pain right above pelvic bone above abdominal scar.

A friend here on the Healingwell site asked me if I had Interstitial Cystitis? I didn't know what that was but she briefly explained. I went online to read about it and it sounds exactly like what I am experiencing.

Does anyone here have this problem and suggestions. I am so tired of having Bladder surgeries. I just underwent having a Loop ileostomy a month ago, and Sept. should be having another surgery to make it permanent.

Thank you for listening and letting me vent.
Your Healingwell Friend,

Regular Member

Date Joined Jan 2011
Total Posts : 373
   Posted 6/15/2011 3:14 PM (GMT -6)   
You know some of my history..one of them is interstitial cystitis.
I went to a pelvic pain specialist, but your obgyn can diagnosis it.
They put a solution that is injected into bladder that will tell them weather or not you have it. Just by your symptoms I would get tested.
They give you a medication called "elmiron" that will settle the bladder lining and spasms but if that does not work you get bladder flushes that give you so much relief!
I think it is worth getting tested. I had actually "chatted" with 2 men in chat that have it too, so if you have any more questions..email me or hope to talk to you soon on chat.
Still wish we were neighbors Hun,
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,Interstitial Cystitis,Ileostomy,Severe Scoliosis,Chronic Pain,Arthritis,BP1,Anxiety/Panic attacks,Several reconstructive surgeries..

Regular Member

Date Joined Apr 2011
Total Posts : 463
   Posted 6/15/2011 6:38 PM (GMT -6)   

I was wondering about that test you were mentioning, where they put stuff in to check if you have it. Does it hurt getting it done and do you have to go to a Urologist for the test or can a Internal Medicine Doctor do it? I've had the test where they look inside with a scope 2x. I'm so tired of having medical problems...I worry that people think I'm a hypochondriac. I even begin questioning myself, but I know that I'm not making any of it up.

Yesterday I called my Psych Dr. to tell her that I need more quantity of my Vistaril because I was only allowed 1-for the whole day for all anxiety/panic attacks and 2-at bedtime. But I am having more than 1-a day. So I picked up the meds today and she gave me #120, 100mg so I can take 1-every 4-6 hours if needed...Yeah :)

How are you feeling? I hope you're doing great! I absolutely enjoy having conversations with you...its nice to have someone that understands and isn't judgmental. So thank you so much.

Look forward to talking to you.
Your friend,
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