I also have hematuria and so does my mother and brother. Until I had a kidney biopsy no one knew what it was from. I have a thin basement membrane in my kidneys, it is familial and there is no problems. Though some doc's really freak out over it. I recently went on remicade for my colitis and I belive the blood in my urine has gone away. Will know more from my next labs.
Just found out I have a cyst on my kidney from an ultrasound last friday.
My creatinine is high, hoping it's dehydration and I do have minimal change disease aka nephrotic syndrome.
I wish you well.
Also, I did change my Dr.s I go to MA General, I feel this Dr. is more knowledgeable than my last one. Though my last one had much more time for me.
UC Pancolitis: dx'd 2000; 1st Remicade 4/26/11, 2nd 5/13/11, 3rd 6/9/11, next 8/9/11.Kidney Disease (Minimal Change Disease): dx'd 2007 but believe I had it since 2000 from sulfasalazine. Current meds: Imuran, Lisinopril, Diovan, Calcium + Vit D, Calcitriol & probiotics.