I need advise please...

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Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 6/30/2011 11:49 AM (GMT -7)   
Hello everyone,

Okay, I also have MS, but am managing well with that...but now I just went through my first time w/kidney stones.

I woke up May 1st with back pain ( right side in flank) Just thought it was a pulled muscle. Well, long story short and 3 weeks later along with 2 ER trips ( they finally found the stone on 2nd trip to ER)....I had surgery due to size of stone, it was 7mm. A stent was also placed and removed one week later.

Now once again I am having sharp pains in same area of my back although this time it is not really going down into groin area..yet. This happened a week ago as well. 2 days later it went away. I did call my Dr. about it and he was going to do another IVP, but when I noticed the pain left, I cancelled the IVP w/ Dr.s permission. BUT...Like I said, this pain has returned.

I have been in and out of the Dr.s so much this past 5-6 weeks I nearly feel like I should pay them board. So heres are my questions...

1. Is it possible for kidney stones to form that fast again? My last stones were calcium oxalate stones.

2. Should I just sit back and wait this new pain out and see if it goes away? It is constant today, but not in groin area or side, just my upper back. Little nauseated to. No fever though.

3. We have well water where we live w/ a water softener system. We are about to get a filter system put on. Is there a chance the well water is causing this? It just seems hard to believe, as we have lived in this same house over 22 years. Just curious if anyone knows.

4. Finally, I did do some research after my Dr. said I could not eat Chocolate, nuts, spinach or Ice tea anymore due to high oxalates in them, but wondered if anyone has further advise on the diet part.

Thanks ahead of time for any help/advise. I am sorry this is so long but I am really dreading going through this pain/ stone thing again, so soon anyway. It was worse than any pain I had ever had and I just want to feel well again. I know I have been a drag ( for my hubby) to be around and now I am getting depressed over this.

Thank you! Kate

susie_sassafrass
Regular Member


Date Joined Jun 2010
Total Posts : 317
   Posted 7/13/2011 8:51 PM (GMT -7)   
Kate,

I had my first kidney stone episode in December 2003. Since then, I have averaged a stone episode every two years. I can relate to your frustration. I had all the symptoms, nausea, fever, and pain in December of last year and was told it was just another UTI infection Which I am very prone to. A week later I was back in the hospital and after a ct scan, they found a 5mm calcium oxalate zone. I had it layered in late January and a stent placed. The stent was removed in February. I was back in the hospital in April with nausea and fever. This time they didn't find a stone , but I had another UTI and hydrohephrosis of the right kidney.

My doctor put me on amilloiride hydroclorathiazide to try to discourage my body from making more calcium oxalate stones. It made my potassium level tank and I ended up in the hospital until my potassium level got back to normal levels. I should also tell you that I have end stage liver disease due to an unknown cause, cirhossis, and am waiting for a transplant. My docs make me go to the ER if my temp reaches 100.5.

I no longer take the diuretic so my urologist is trying to control my stones through a high fluid/low oxalate diet. I try to drink at least a gallon of water a day and make sure I drink before going to bed at nite. Sure I have to get up to pee during the night, but this is the time docs feel the stones form. I hate plain water so I drink flavored water called fruit2o. It comes in lemon, raspberry, strawberry, and grape. As to the oxalates, I avoid high oxalate foods:chocolate milk, soy products, nuts, Whole wheat products, blueberries, concord grapes, raspberries, beans, carrots, celery eggplant, peppers, potatoes, spinach, sweet potato, zucchini, marmalade, chocolate, parsley.High oxalate foods have more than 10mg of oxalate per serving. If you do a search on the Internet, I am sure you can find a list of high oxalate foods. If not, let me know, and I can fax/send the lists for low, moderate, and high oxalate foods along with the high fluid. diet my urologist at Northwestern gave me.

Hang in there.

Susie in Chicago

Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 7/18/2011 1:48 PM (GMT -7)   
Thank you for your response! I finally did do an internet search and found a very nice list of low oxalate foods I can eat and we also recently had a nice water filter system installed, so now we can drink pure water.

I am so sorry to hear about your liver disease. I will remember you in prayer.

I sure hope I don't have any more stones for a LOnnnng while, lol. I can't recall ever being in so much pain. I am doing fine now. No stone symptoms. I do see my urologist on Wednesday this week for check-up, but like I said...no problems right now.

Thanks so much for responding and my prayers are out for you. Fondly~Kate
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