stage 3 ckd extremely frightned

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gizmos mom
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/29/2011 9:44 PM (GMT -7)   
Hi I am 46 yrs old I am new here and just recently got diagnosed with stage 3 ckd gfr was 51 alkaline phosphatase 140 creatininine 1.2 glucose 121. and vitamin d defficency 7.6.
 
Im very scared nervous and not sure whats gonna happen next. Is these numbers extremely bad could it possibly b something else,how do i tell my husband should i wait till they confirm it 100%.
 
Just dont know what to think or do when the Dr told me I was in total shock and when i finally calmed down (couple days later) hes on vacation
 
  I greatly appreciate any help you can give me confused

micbud
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/31/2011 10:39 AM (GMT -7)   
Hi - I'm 56 and was diagnosed with eGFR of about 50 five years ago. My creatinine is the same as yours, as was my Vit D. Don't remember the other markers. We tested my eGFR every 6 months for a few years and it goes up and down between 50 and 60, my creatinine has stayed steady and I took supplements and easily brought my Vit D to to normal. I have a physician friend who has gone years in this same state. The important things to know is whether your condition is stable or declining (re-test), and to learn things you can do to baby your kidneys (treat any high BP, Diabetes, moderate your salt and protein intake, drink water.....) Good luck. There's lots of good info on the net (along with alarmist, bad stuff - use your discernment!)

Cutipatuti
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/31/2011 10:39 AM (GMT -7)   
Hi Gizmos Mom,

I am not a doctor but I was diagnosed with CKD in 2006. Through diet (and blood pressure meds) I've been able to keep my GFR between 45-50 since then. I know how scared you must be but don't panic. Know that while CKD can't be cured it can many times be controlled for many years, perhaps forever. At 51 (which may vary a little either way once you are on meds or through diet) you are at the higher end of Stage 3. Your glucose is a little high so you need to check that as you may be diabetic or pre diabetic. Your creatinine isn't that bad - mine's been that since 2005. Check with your doctor when he gets back from his holiday. In the meantime you might check out this website www.DaVita.com. It has loads of information and it helped me immensely when I was first diagnosed and there was little information available where I live. It's important that you realize that there are things you can do for yourself which is mainly diet - for CKD you'll need to keep your protein low to perhaps 60 -70 grams (total) a day. You'll need to have blood tests for potassium and phosphorus to see if you will need to make any adjustments in the amount of fruit and veggies you eat a day. If you are diabetic then either medication or, again, controlled diet. Too, know that many over the counter meds affect your kidneys - so use sparingly, if at all. Consider your blood tests - which I get every 3-4 months - to be your bible. They will show you how you are doing in controlling your diet so insist on having them at least twice a year if not more often. Another good website is www.livestrong.com where you can input what you eat each day and it tallies up many of your nutrients - protein, fat, carbs, etc. I know it seems like a lot but just learn at your own pace and write down questions to ask your doctor when you get back - he should refer you to a nephrologist (insist on that) who is specialized in CKD. Don't let all the information initially overwhelm you - DaVita will help educate you and they also have a daily menu planner that might help you get started understanding how to control your diet.
I wish you the best, know the odds are on your side for a long and normal life.
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