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MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/15/2012 7:38 PM (GMT -7)   
Hello everyone,

I am new to the boards. I had my first appointment with the Nephrologist today. He is scheduling me for a CT-guided kidney biopsy. Has anyone had this procedure? How painful was it? How long did you have to wait before results were in?

Any help is appreciated.

MizPiggy31

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/16/2012 1:41 PM (GMT -7)   
I am not sure what a CT guided biopsy is. I had a biopsy done in 2007 and I was put under and only remember feeling groggy after and a little sore for the next couple of days. What are your symptoms? I had high proteins in my urine and have minimal change disease.
 
I think had the results within a couple of weeks, it had to get sent to Boston to be seen under a special type of microscope.
UC Pancolitis: dx'd 2000; Remicade since 4/25/11, every 8 weeks. Kidney Disease (Minimal Change Disease): dx'd 2007 caused by 5ASA's (thank you sulfsalazine, lialda and asacol). Current meds: Remicade & prenatal vitamin. I feel better than I have in years being off the ton of medication I was on before.

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/16/2012 8:01 PM (GMT -7)   
I have protein in my urine. Actually I only have half of what the body needs of the Albuium protein in my body. I also had a positive ana. So I am also going to see a Rheumatologist about possible auto-immune disease like Lupus.

I have to do a 24 hour urine test and I go next week to get my blood work done. Right now I am waiting for the insurance to approve the procedure so the hospital can schedule it.

I looked it up online and kind of freaked myself out. I don't like needles.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/17/2012 7:07 PM (GMT -7)   
The internet can be a scary place, try to take it one step at a time.  I had a slightly elevated ANA and saw a Rheumatologist but had more bloodwork and was told I did not have lupus.
 
 

kmall
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/19/2012 9:54 PM (GMT -7)   
MizPiggy31 - Sorry to hear about you needing a biopsy. I had an ultrasound guided kidney biopsy in Dec 2010 that is very similar to the CT guided biopsy. I too scared myself to death reading things on the internet. The procedure was not as bad as I made it out to be. They had me awake, lying on my stomach, and numbed the kidney area. I could not feel a thing during the procedure. They will ask you to take deep breaths and hold it while they take a few pieces of your kidney. The sound that the machine makes is loud and probably the worst part. They will keep you in the hospital/office for about 6 hours afterward to ensure that you are not having any bleeding. The pain and soreness will set in once you get home. I had a biopsy on my breast 5 years ago that I think was WAY worse than the kidney biopsy. Due to the Christmas holidays, I did not get my results until the beginning of Jan - so about 2.5 weeks after my procedure.

I was diagnosed with Minimal change disease in Jan 2011 and now I am in remission and doing well! Good luck! Let me know if you have any more questions!

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 2/20/2012 7:40 PM (GMT -7)   
Hey MizPiggy. I had a ultrasound kidney biopsy about 4 months ago and have had 2 biopsies with ultrasound. I by far love the one with the the CT machine much better. My nephrologist did the ultrasound while a radiologist seems more worried about pain levels. Which is why I liked that much better. I had 0 pain with the CT biopsy. Honey, trust me....don't get freaked out with what the internet says. It is so simple you will feel silly after fretting so much over it

What other questions do you have? I actually do have lupus and have had it 5 years. Was diagnosed when I was 19. Do you have any other symptoms besides a positive ana and the kidney issues? Here for ya if you need anything. Also, feel free to email me.. You will find my email by clicking on my name highlighted in blue on the left side of this box.
Amy
Lupus Moderater


dialysis from lupus nephritis

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/21/2012 8:03 AM (GMT -7)   
Hi Aimsgirl16 and everyone else,
 
Thank you all for responding. Right now I am waiting for my insurance to approve the procedure so we can schedule it.  I did not realize I was having problems with my kidneys until January when I had to go to the ER because my feet and ankles were swollen very bad.  I was not in any pain but when I got to the ER my blood pressure was elevated.  They kept me for a while and gave me some water pills.  I went to my primaray doctor and she odered some blood work and a urine sample.  My urine had some blood and protein in it.  My Albiuim protein is only 1.7 and it should be 3.5 (minimum).  I also had a positive ana. 
 
I realized that for over a year now I have been feeling sick all the time.  I am fatigued, feet and ankles are always sore, stiff and tingle.  I have muscle pains in my shoulders in neck all the time.  I really thought I was sleeping wrong and never really paid that much attention to it.  I also have headaches and my doctor perscribed Ibprofin (sp) that the nephrologist has not stopped.  Mt primary said it is probably autoimmune and I know Lupus and other autoimmune diseases run in my family.
 
Really just want some answers so I can move on from here with the best possible treatment.  Going to see a Rheumatologist on Thursday.
 
MizPiggy
 
 
 

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 2/22/2012 11:46 AM (GMT -7)   
Have the doctors asked you to eat more protein or less, or have they not really said anything about it until biopsy is back?
Amy
Lupus Moderater


dialysis from lupus nephritis

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/22/2012 8:21 PM (GMT -7)   
They have not given me any specific directions other than to stop taking the Ibprofin and to exercise so that I can drop some of this extra weight I have.

Got a call from the Radiology nurse today but I missed it. No reception at my job for my cell. I am going to call them back tomorrow. This is probably to schedule the biopsy.

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/23/2012 4:11 PM (GMT -7)   
Kidney Biopsy scheduled for next Wednesday the 29th. Looking forward to getting it done and over so that I can have some answers, hopefully.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/24/2012 12:35 PM (GMT -7)   
Good luck with the biopsy!  Keep us posted!  I will keep my fingers crossed for you.
UC Pancolitis: dx'd 2000; Remicade since 4/25/11, every 8 weeks. Kidney Disease (Minimal Change Disease): dx'd 2007 caused by 5ASA's (thank you sulfsalazine, lialda and asacol). Current meds: Remicade & prenatal vitamin. I feel better than I have in years being off the ton of medication I was on before.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 2/24/2012 12:44 PM (GMT -7)   
oh btw the symptoms you described sound like what I have MCD, the swelling, low proteins in you blood, they are not filtered in your kidneys correctly so it comes out in your urine, my Kidney Doc said it was like an 8 cylinder car running on 4 cylinders, your body has to work harder so it tires you out and high blood pressure is also a symptom.

I believe I got it from taking medication that I was on for 7 years and I tried a ton of medication and it helped some but did not put me into remission. I think that is because I was on the medication for so long that it did some kind of permanent damage. However, most people with MCD will reach remission.

MCD is an autoimmune disease and so is ulcerative colitis, I take the remicade for my colitis and my kidneys have been doing very well. There is actually a study with Humira for another type of kidney disease which the humira is in the same class of drugs as remicade. I am close to remission but not there completely just slight protein loss about +1 in the afternoon (which is not bad) and my BUN and creatinine are good as long as I stay hydrated.

I'd recommend talking to your Doc's about salt. A lot of salt will keep you swollen, MSG, chinese food and japanese food w/soy sauce, soups (except trader joes low salt) really make me swollen.

Take care!
UC Pancolitis: dx'd 2000; Remicade since 4/25/11, every 8 weeks. Kidney Disease (Minimal Change Disease): dx'd 2007 caused by 5ASA's (thank you sulfsalazine, lialda and asacol). Current meds: Remicade & prenatal vitamin. I feel better than I have in years being off the ton of medication I was on before.

MizPiggy31
Regular Member


Date Joined Feb 2012
Total Posts : 114
   Posted 2/24/2012 2:54 PM (GMT -7)   
Thanks Beth,

I will remember that. My husband is monitoring my salt intake because of the High Blood Pressure. I already gave up soda and now maybe Chinese, Oh No!!!

MizPiggy31
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