Acute Renal Failure of my 2 year old daughter

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Captain Karma
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/23/2012 10:01 PM (GMT -7)   
Hi there,

Was wondering if anyone has had a similar situation. My daughter was diagnosed with a bad case of conjuntivitis 4 weeks ago. She was rushed to the A&E of a local children's hospital. She was treated and given the following :

1) Ibuprofen ( used only once when her fever was high).
2) Anti-biotics ( liquid suspension , cant remember the name)
3) Eyes Drops
4) Eye Ointment

She completed the course of antibiotics and her conjuntivitis cleared up. However, she remained listless and on the 8th day , started to get rashes over her body. On the ninth day, we took her in for her eye specialist appointment who gave her the all clear. However, we rushed her to the A&E dept to have her rashes treated. Upon inspection , she was immediately warded. A little while later , her blood test results indicated that he Chretinine level was at 1200! She was rushed to the ICU ( internsive Care Unit) and the doctors advised that she had to go through dialysis as her electrolyte levels were dangerously fluctuating. They tried to start the dialysis treatment , but the machine kept clotting. She was too small. So they stopped the dialysis and started giving her laysic ( spelling) a drug to help the kidney process and for her to pass urine. Up till like a week ago she was able to pass urine without the drug , even more than she usually does. She did progressively for the last 2 weeks up to now where her electrolyte levels have stabilised and her Chretinine is now 70. She was discharged last week and is back home. She is still feeling lethargic and hasn't regained her apetite , but is passing urine per normal. Could it be due to all the blood she has lost ( for testing purposes) during her stay at the hospital ?

The doctors cant really pin point as to what caused the kidney is fail in this way as they have never experience a Chretinine level of 1200 for a 2 year old toddler. They suspected that it may be an underlying problem she has ( i.e... autoimmune disease) that tipped her over , with the severe dehydration + course of anti-biotics. However ,all the tests for autoimmune diseases came back negative ( c3 , c4) .The ultra-sound scan showed that her kidneys were swollen. One was slightly more swollen than the other. For now it appears to be a Acute Renal Failure which has recovered , for now.

Have anyone of you come across something like this for a child of her age  ?

Im bringing her in for a follow up check up tommorrow ( more blood + urine tests). Where do we go from here ? :(
 
God Bless,
Captain K

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/24/2012 8:26 AM (GMT -7)   
Hi Captain,

That sounds like a terrifying ordeal for your family. I am so sorry you are going through this. I don't have any answers but try going to nephcure.org there are a lot more people that go there that have kidney problems.

I'd check but ibuprofen may not be good for her. Also, it can be tough getting a diagnosis. My recommendation, do as much research as you can on all of the drugs she was on, if there is anything in the side effects that say, renal, nephrotic syndrome, nils, etc. then that could be the culprit.

Find the best Doc you can, go for 3rd, 4th, 5th opinions. Be your own advocate! I was on sulfasalazine for 7 years and that caused my kidney disease and finally my new Gastro had me checked out b/c in rare instances it can cause it. The side effect on the label along with 100 others said nephrotic syndrome. In retrospect it would have saved me years if I had researched every single one of those.

Best of luck, take care, I hope your daughter does very well.
UC Pancolitis: dx'd 2000; Remicade since 4/25/11, every 8 weeks. Kidney Disease (Minimal Change Disease): dx'd 2007 caused by 5ASA's (thank you sulfsalazine, lialda and asacol). Current meds: Remicade & prenatal vitamin. I feel better than I have in years being off the ton of medication I was on before.
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