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paulinemarie
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/12/2012 6:11 AM (GMT -7)   
Hi all my names pauline im 47
 i have spina bifida incomplete level L2 basically means im paralised from just under ribs down just not total paralysis 
 
 i just cant walk or feel from knees down anyway
 
 i also incurred a urstomy as part of this spina bifida from birth
 
im now in trouble with a parastomal hernia behind this urstomy 
 
 because in the illeal conduit whch has narrowed big time there are two kidney stones lodged tight nine blastings have not worked internal surgery failed nine times and dialysis apparently is out completely
 
 my local spinal unit have no idea now how to fix this im GROWING the stones  but they pass its just these two that just arnt budging does anyone live in the states and know anyone in one of the hospitals there that do FREE surgeries
 
 in this specialised area id be very grateful for any information anyone could give me but pls keep it just in regard to the issue in hand  thank you

Donato
New Member


Date Joined Dec 2012
Total Posts : 14
   Posted 12/22/2012 5:59 PM (GMT -7)   
Have you found anyone Pauline?
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