My 10 year old has now had 2 stones removed (6 months apart) with stents put in, both over 6mm in size..and now has 3 more!
We go back monday to see her specialist.
I guess one of my questions is: how do any other moms or dads deal with a child going thru this? I know this is not what most would call "serious", and that there are far worse things she could have (and trust me, I am sooo thankful that it is only kidney stones), BUT kidney disease runs in the family..
I just want to make her feel safe and secure..We talk all the time about
things, I have learned to wait and let her bring it up, then just sit and let her vent..but is there anything that I can say to maybe ease her fears more? What has anyone else told their kids to help them???
It doesn't help that there have been A LOT of other stresses on her this year. I just feel like she can't catch a break. I was in hospital for a month and am still not done recovering or even having my surgeries..So that stressed her out. Especially because I went in like a week after her inital surgery, and I was 4 hours away from home..And now one of her older brothers is getting married and that is a whole other nightmare..(Only 1 side of our family is invited, none of our friends (that were always "aunts and uncles" to our son, our other daughter isn't invited..all because the bride doesn't like any of therm!) So she is feeding off the stress from that..
and then today when her surgeon called and we have to be there Monday (again, 4 hours away from home)
Just not sure how much more she can take... poor baby.
Any ideas would be MORE than welcome!
Gluten intolerance, gluten free for 10+ years,
hypothyroidism for 20+ years (family history)
total colectomy with ileo rectal anastomosis 1/12