Suffering since 12/28/2012

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bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/12/2013 2:17 PM (GMT -7)   
Three different doctors and a radiologist can't agree on the size of my kidney stone. They say anywhere from 3mm-7mm. I have had kidney, vaginal, and abdominal ultrasounds, as well as one ct scan. I'm due for another ct scan this coming monday. I have had 3 painful episodes sine 12/28/12. I have had a lot of physical pain in my life from other conditions, and this pain is by far the worst. I was in the er twice and two dr. visits. They "think" it's still in my kidney bouncing around. It gets to the opening but never comes out. Insurance is giving me a hard time about how many pain med pills I can have..this is frustrating. I have learned how to ration out my pills because I am SO afraid of another episode hitting me and I have nothing to ease the pain. I want it out now, but they want to wait and see if it comes out. Isn't it my choice if i'd rather have it out versus the crazy anxiety I have anticipating when the pain will hit. It's like waiting for someone to come up behind you and stab you repeatedly for 4+ hours. They would like to do lithotripsy but they seem to think it wouldn't show up on plain xray...but they are not disputing the possibly that it's possibly 7mm. They told me they would ideally like to wait 5-6 weeks before trying anything! I have to work. 2 out of 3 painful episodes were at work. What if i'm alone say at the grocery store and it hits... they dont think about these things. I am pretty down about this...my mind is mush, and i'm so scared of the pain. Why am I being made to suffer? If I end up going to the er again, and the take in nurse asked routine questions like are you suicidal...I may say yes. This pain makes you really question if life is worth living. I'm not planning on ending my life...but I just can't imagine how I will be after a few more of these episodes. I'm not religious but I consider kidney stones the devils rocks, and they were placed there for torcher reasons. I'm so sad, hurt, angry, hopeless, scared, and anxiety levels are high.. I have been put on Toradol, percocet, rapiflo, and flomax. I'm searching for people like me, I need to know i'm not alone. Please...

Post Edited (bianc34) : 1/15/2013 4:30:19 PM (GMT-7)


bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/15/2013 3:48 PM (GMT -7)   
So far no more painful episodes since the last one, but i'm still out of work(almost a month). I'm not dependable. If it happens again at work I will be leaving my co-workers screwed. (I am a receptionist supervisor at an animal hospital) The ct scan that was scheduled monday has been recheduled for tomorrow(ct tech was sick). My question is...how does everyone with kidney stones still work? I have read many stories on here about people having multiple stones on a regular basis. How do you do it? I only have one stubborn one! When I go back to the doctor tomorrow and they seem reluctant to remove it, what is there to say to presuade them to go ahead with removing it? I have read a couple stories on here about some people being frustrated with urologists wanting to remove it right away! I have also read that the lithotripsy feels like a jack hammer, and that the utereroscopy is worse than passing the stone. It must be obvious to everyone that this is my first one.. lol! 

bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/15/2013 3:50 PM (GMT -7)   
Should I get a second opinion as well?

bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/16/2013 2:30 PM (GMT -7)   
Another ct scan today, just to find out I have to wait two days to get the results. I'm starting to lose hope. :(
I have had experience with the following...
Bipolar II, Endometriosis, Interstitial Cystitis, Dysmenorrhea, Vaginismus, skin cancer history, migraines, IBS, kidney stones, sexual abuse survivor, food and indoor/outdoor allergies(shots),

bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/17/2013 8:42 PM (GMT -7)   
Is anybody out there?? I will find out ct results tomorrow..trying not to get my hopes up...
I have had experience with the following...
Bipolar II, Endometriosis, Interstitial Cystitis, Dysmenorrhea, Vaginismus, skin cancer history, migraines, IBS, kidney stones, sexual abuse survivor, food and indoor/outdoor allergies(shots),

bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/18/2013 11:37 AM (GMT -7)   
I guess i'll try a different forum... :(

bianca34
New Member


Date Joined Jan 2013
Total Posts : 7
   Posted 1/22/2013 11:38 AM (GMT -7)   
I'm not expecting anyone to really reply since no one has at this point... just thought I would add that I will be having a uterteroscopy this thursday.. thanks anyway

Poweredbylove
Regular Member


Date Joined Aug 2012
Total Posts : 160
   Posted 1/30/2013 10:43 PM (GMT -7)   
I would try a second opinion. My ex-wife had similar symptoms and she was in the hospital for 3 days with a 7mm stone but by the end of the 3rd day she was able to go home w/o surgery or anything like it. Sometimes even if they are large they will break down by themselves...actually most of the time this is true.

Best of luck. I am sorry there are no posts or replies. I try to frequent this forum but I too find it lacking in posters. People like to read the topics (even over 1000 views but 0 replies........) but are too lazy/uncaring to reply even if it means taking 30 seconds to create an account.

If you have any questions or anything let me know please.
Age: 28
DX: Lumbar spondylosis, Sacroiliitis, Lumbar radiculopathy, Lumbar disc disease, disc failure L4-L5, disc rupture L1, T11 right protrusion
Meds: Fentanyl patch 75 mcg/hr every 48 hours, oxycodone 5mg 2x daily, other assorted meds
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