High Creatinine & 40% Kidney loss

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English Roger
Regular Member


Date Joined Oct 2011
Total Posts : 180
   Posted 4/9/2013 5:18 AM (GMT -7)   
Hi i'm new to this site i'm after some information worried and confused.
After a routine blood test my GP told me I had high Creatinine so referred
me to a Nephrologist who I seen today.
He said that I had lost 40% of my kidney function this surprised me and
scared me.He said his job was to try to make sure I did not lose more function.
I feel well not sick but I would like to know what the future holds can I keep going
with this sort of lose confused & very worried.
English Rodger.
Age 59 at diagnosis
PSA 9
Biopsy positive 4+3=7
15 May 2010
Gleason 4+3=7
Stage T2B
Perineum invasion
PSA at 3 months=undetectable
6 month PSA still 0.03
12 Mth PSA 0.04
18 Mth 0.03
2 Yr 0.03
33 mth 0.04
Incontinance no problem
ED came good now back to where i started ED a problem Viagra no help.

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 7/14/2013 8:11 AM (GMT -7)   
English Roger ...
 
  I'm not sure why there haven't been replies to this thread - unless it's because it is about a potential kidney problem for someone who has prostate cancer - but it's posted under Kidney Problems.
 
  I do have advanced Prostate Cancer - and kidney problems as well! I was in the hospital three times from January of 2011 to June of 2012 - with what ultimately was called kidney failure. The diagnosis by my oncologist 
in January of 2012 was that the metastasized prostate cancer had moved into the area of the right kidney and was blocking its function of going to the bladder.
  Rather than going into dialysis, another procedure was tried ... and it has worked pretty well for the past 13-months since June of 2012. I had a nefrostomy tube placed on the right side for that kidney - and an internal stent placed on the left side for that kidney. The nefrostomy tube was placed by a Radiologist and needs to be replaced about every 4-months - and the stent is replaced about every 4-months by my Urologist.
  If the day ever comes that you're given a choice of a need for dialysis or other procedures - please research the nefrostomy tube placement. It is less invasive to me - and while there is a maintenance factor, it is so much less confining than doing dialysis a couple of times a week.
  Wish you well.
 
My background:
PCa originally diagnosed in 2003/2004 at age 60
Radiation (5x5-days) & Brachytherapy (96-seeds) in 2004
PSA in normal range then - for about 6-years
PSA increasing in 2010 & bone scan OK
Casodex briefly - then Lupron from late 2011 to current
Pelvic catscans inpast 30-months - 7 total
Zytiga oral chemo for 5+ months until July 2012
Prednisone added treatment - 5mg twice daily
PSA increasing continuously with Zytiga
Xgeva injections added - monthly
Taxotere intervenous chemo for 30-weeks (11-sessions) to April 2013
PSA dropped from 54+ down to 12+
No chemo for 2-months - PSA up from 12+ to 23+ in June 2013
Xtandi oral chemo started three weeks ago
PSA sceduled for next week - after 4-weeks of Xtandi
 
  Note - only prostate cancer tests/treatments listed above. The kidney function treatments were much, much less - consisting of some diet restrictions & the nefrostomy tube + stent mentioned above.
 
  Again - best wishes to you ... don't ignore the kidney function!
     

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 7/16/2013 3:35 AM (GMT -7)   
Hello Roger and sorry for the long wait for replies. Those of us that come here mod in other forums and Bill is the new kidney mod and usually is in here a lot, not sure why he didn't see your post. Im sure he will get here and respond soon.

I have a few questions for you. Did this Dr give you any ideas as to why or how you lost that much kidney function? That certainly is going to matter when it comes to prevention of more loss.

Your a PC survivor or are you still in treatment of some kind?

You actually can do well with only one kidney but I would sure be asking for a second opinion if this Dr didn't answer your questions to your satisfaction.

Keep checking as sometimes the responses are slow here and I will be back.
" Don't give up God gives his hardest battles to his strongest soldiers.

Vickie
Moderator chronic pain

Disabled since 1998 on SSD
DX: lft knee TKR. 6 rt knee surgeries for meniscus repair. Pars defect,ddd at L3-4 S1. disc collapse at L-3 with nerve impinge,legally deaf, shoulder repair,post encephalitis/mig
Meds(Methadone, lyrica, K+,Indocin,Zantac,Zanaflex,Inderal,HRT

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 7/16/2013 4:55 PM (GMT -7)   
Rodger-

Wondering if your doctor has been able to stop the kidney function loss?


Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11
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