I work in clinical research and I think it's very important to educate the public on what clinical research is and how it can possibly help you.
My area of specialty is renal research so I know there are treatments available out there that aren't normally being offered to you.
Before a medication hits the market, the FDA requires that it goes through 4 phases of "testing". During this time data is collected to determine if the medication produces positive results and if there are any side effects.
I know there are a few studies being offered for ESA therapy (treats anemia) as well as new medications that are hoping to slow the progression of kidney disease.
Studies are free of cost and are very closely regulated by the coordinating physician. You also are compensated for participating.
I emplore each of you to visit clinicaltrials.gov (a government website) and take a look at some of the trials that are being offered, find a REPUTABLE research clinic in your area and go talk to their doctor about the enrolling studies. Also ask your kidney doctor if he conducts research studies in his office (many doctors do and you probably dont know it).