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Date Joined Dec 2012
Total Posts : 18
   Posted 10/15/2013 7:11 PM (GMT -7)   
confused My god daughter was recently diagnosed with Pheochromocytoma and has spread to her spine. She will begin getting radiation soon, and I think chemo. Can anyone help me in what awaits her.. What can we do? lost and in shock... Thank you

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Date Joined Dec 2008
Total Posts : 4961
   Posted 10/15/2013 11:18 PM (GMT -7)   

First off I am very sorry to hear your god daughter has this. My prayers for her and her family.

I didn't know anything about this condition and did a little research on Google. I found that it is usually benign, but 10% or so can be cancer. It also is usually removed surgically, but can come back and spread. It seems there is a high chance of it returning.
From what I read surgery is the usual 1st treatment along with close blood pressure monitoring.

Take care,
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