what will happen next?

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Date Joined Mar 2009
Total Posts : 1118
   Posted 12/15/2013 10:30 AM (GMT -6)   
Hi, I have popped over from the crohns board as I have now had to be referred to a Renal doc a quick insight to what's happening.

In Jan13 I had major surgery for Crohns my bloods were all fine while I was on TPN ( Total parental nutrition basically being fed through a port in my chest) till I came off it in July. Since then I went through a stage of craving salty foods went to see GP in Aug about this and he arranged for blood test for kidney function as well as magnesium & calcium he called me a few days later and was concerned as my Creatinine levels were 164 told me to come off anything salty and repeat bloods in 3 days I done this and the result came back at 156 so since then I have had loads of repeated bloods for the Creatinine and can't seem to get it below 148 I'am now being referred to Renal doc as the GP is puzzled as to why its still high. Haven't craved salt for a while and don't put it on my food or cook with it now and still the test is coming back high yet I have no symptoms such as back ache or any pain

My Question is what will the Renal doctor do next?
Also what is Creatinine and what does it do? I have googled it but its so confusing I can't make it out just need someone to tell me in simple form

Thank you in advance for any advice you can give Bev

Forum Moderator

Date Joined Dec 2008
Total Posts : 4961
   Posted 12/16/2013 7:20 PM (GMT -6)   

While I don't know what they would do next I had a similar issue after long term PTN. I had a tear in my esophagus that wouldn't stop leaking after surgery and I was on TPN and then on JPeg and after I finally got rid of that I started getting weird kidney results and stones.

Mine resolved itself within about 8 months though.

Take care,
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 12/17/2013 2:49 PM (GMT -6)   
Thanks Bill for your reply. I spoke to consultant at the hospital where they treat me for crohns and he seems to think that it could be something that was in the TPN which I'm now lacking in. It's just trying to find out what that thing is. Its going to be like looking for a needle in a haystack!

So if the Creatinine levels remain high what damage could occur to my kidneys do you know? Bev
Diagnosed with crohns at 13, right Hemicolectomy in 93, remmision till sept 08, small bowel resections & Entercantaneous fistula excised, along with temp stoma in 09 stoma reversed Apr 2010. 2011 3 more fistula's to deal with!!
Major surgery Jan 2013 had all fistula's, Gallbladder & sections of small bowel removed permenant ileostomy given.
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