Creatinine 1.48, ESR 37, Should I be worried?

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sage1
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/24/2013 3:31 PM (GMT -7)   
Hi everyone,

I am new to this forum and hope to get some advice. I'm a 51 yr old woman and was finally diagnosed with mild Crohn's Disease 6 months ago after a year of testing and seeing all kinds of specialists. My blood test results just came back with the creatinine at 1.48 and the ESR at 37. My hematologist didn't seem too concerned but he thinks I should see a nephrologist, who is booked up until February. Ever since I got really sick a year and a half ago, I've had an increased urgency and frequency to urinate, sometimes there's just pressure and not much there and other times I'm surprised how much clear urine I'm passing. A urologist checked in 2/13 for cystitis but said I had Overactive bladder and prescribed a medication that I took for 3 weeks but it made me feel sick and didn't help. I'm highly sensitive to many medications, supplements, fillers, and foods. After changing my diet to gluten-free, sugar free, no grains, no processed foods, no dairy, only organic, grassfed, pastured, wild animal products, I've improved quite a bit. However, I still have to get up 4-6 times a night to urinate. No pain on urination. I have low back pain, but also upper back pain, neck pain, and joint pain which worsens if I ingest something I am sensitive to, or don't take care of myself with sleep and exercise. The only medication I'm on right now is LDN for the Crohn's (low dose naltrexone in a hypoallergenic capsule and the only filler is sucrose). I can only drink about 32 oz of water a day because if I have more I would be going pee every 30 minutes. Here are my lab results for ESR the past 18 months:

6/12: 99,
9/12: 83,
11/12: 45,
3/13: 102,
6/13: 50,
12/13: 37

Also on the 12/13 report: BUN= 21, IRBC=240, Iron Saturation=17, Transferrin=192, RBC=4.07, MCV=100.1, MCH=33.1 (I was NOT fasting for this last test and everything else in normal range)

I don't have diabetes or any cardiovascular disease and there is no history of kidney disease in my family. When ever my doctors saw my lab results in the past they would always just say "you seem to be dehydrated", but until now there was never a concern about my kidneys. I have lost 10 lbs that I can't seem to regain, fatigue, headaches, nausea, lightheadedness, feeling cold, nerve pain in feet and hands, and itchy skin without a rash. All of these symptoms seems to fluctuate from day to day. Somedays I feel pretty good and some days I'm miserable. I looked up GFR tables and found that 37 is stage 3 kidney disease. My husband thinks I might be getting nervous over nothing. Anyone have any thoughts. I wish I didn't have to wait so long to get in to see the kidney specialist!

Thanks!

confused

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/24/2013 8:45 PM (GMT -7)   
sage1

Welcome to Healing Well.

Sorry I don't have any info for you, but hopefully a member that has some insight will be along.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

sage1
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/25/2013 9:50 AM (GMT -7)   
Bill,

Thank you for the warm welcome to Healing Well. I realize it's Christmas time and everyone is busy, so I don't expect to get any responses for a few days.

Happy Holidays and well wishes to all!

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 12/27/2013 1:45 PM (GMT -7)   
Hi Sage1, I have similar issues to you( see my post below under what happens next.) I don't have any pain but was craving salty things also get cramp quiet a lot in my feet & legs I received a letter today referring me to see a nephrologist have to have a ultrasound, more blood tests & do a urine sample. then will get an appointment within the next 10 weeks!
The IBD nurses mentioned dehydration to me but I thought I drank enough throughout the day but maybe not will let you know how it goes Bev x
Diagnosed with crohns at 13, right Hemicolectomy in 93, remmision till sept 08, small bowel resections & Entercantaneous fistula excised, along with temp stoma in 09 stoma reversed Apr 2010. 2011 3 more fistula's to deal with!!
Major surgery Jan 2013 had all fistula's, Gallbladder & sections of small bowel removed permenant ileostomy given.

sage1
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 1/6/2014 1:31 PM (GMT -7)   
Thanks for your reply Bev. I finally have a chance to respond after a busy holiday season.

I ordered myself a routine urinalysis from a company called Accessa Labs. I just got the results and everything was normal. I'm still waiting for the Kidney doctor's office to call me to set up the appointment. Apparently he's booked up for at least a month so I think I'll call every few days to see if he's got a cancellation. I'm just anxious to see if this is anything to be concerned about. I assume that if it was bad I would have protein showing up in my urine, right? Does anyone know if a normal urinalysis will rule out CKD or if it's still possible to have it?

Good luck with your upcoming appointment. Besides craving salt and getting the feet/leg cramps, did you have any abnormal results for creatinine, BUN, or GFR? If so, what were they?

Take care, Ginny

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 2/19/2014 11:19 AM (GMT -7)   
Hi Ginny, I recently had an appointment through the post. Have had loads of bloods done 22 in total and also urine test they all came back clear apart from the creatinine level in blood were still high had an X-ray that also came back clear just waiting to have an ultrasound now.

The Consultant said if this comes back clear too, then they want to take a biopsy of the kidneys so at the moment I'm still no nearer to the cause of the high levels. They were 163 but now are usually between 146-152

Hope by the time you read this you have managed to get an appointment and have some answers.
will let you know my outcome.

Bev x

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