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aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 1/4/2014 7:16 AM (GMT -7)   
Hey! Anyone else on dialysis on this forum? If so, how long? I have been on it since October 2011. I started of with Peritoneal dialysis and I ended up doing dialysis 24/7 and was exhausted and not getting good clearance so moved to in center Hemo! Been doing that for a year now and hopefully looking at transplant in the next few months from a living donor :D!!!
Amy
Lupus Moderater


dialysis from lupus nephritis

Post Edited (aimsgirl16) : 1/4/2014 7:19:58 AM (GMT-7)


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/6/2014 3:21 AM (GMT -7)   
Amy-

Praying for a donor match and successful surgery soon.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11

cin222
New Member


Date Joined Feb 2014
Total Posts : 2
   Posted 2/20/2014 1:11 PM (GMT -7)   
Hi aimsgirl

I am on dialysis and have been for about seven years now. I work full-time and do it at home. In Australia, you are allowed to do it at home on your own. I have had no issues at all. I feel well most of the time except for GERD which is probably due to the medication, not the dialysis. I don't want a transplant. The dialysis works for me so I am going to stick with it. Don't fix what ain't broke and all that. Doing it at home you can do it as often as you need to for as long as you need to so it is a pretty good alternative. I know in centre is pretty restrictive. There is a site called www.ihatedialysis.com which is excellent. Not negative as the name suggests. There are people on that site that have been on dialysis upwards of 30 years. All the best with the work-up for your transplant. While you are waiting, make sure you keep healthy by exercising and eating the right foods. Keeping a low potassium diet is hard. I really struggle with it because I love my fruit and vegetables. If you want to have the extra servings of potassium make sure you do it at least six hours before dialysis. I use to eat potassium on dialysis and expect that it was stripped off during dialysis so I suffered from high potassium on a few occasions. You need time to metabolise the food. I don't touch bananas, avacado, mangoes, oranges or tomatoes but I pretty much eat everything else in moderation. There is a guy here in Australia who has been on dialysis now well over 15 years who is a triathlete and rides his bike 100 kilometres a day. He is amazingly fit and healthy and doesn't look sick at all. So while a challenge, you can live quite well with kidney failure. All the best with your journey. I hope your transplant goes well. Regards, Cindy.
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