Kidney Disease and Kidney Cancer

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Coaster Lover
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 2/14/2014 7:32 AM (GMT -7)   
Hello! I am new here and have been struck with both Chronic Renal Failure and Kidney Cancer. (Kidney Disease came first, Cancer was just a stoke of bad luck)

My level is pretty stable at 1.8, but I just have the one Kidney. When I was diagnosed with Cancer they did a partial in order to keep as much function as possible but the kidney did not make it and a renal scan confirmed only the right side is working.

Now a question: The Kidney that had the cancer is atrophied and doing nothing. I have had a lot of pain from that area and am wondering if it could be causing the pain. I have been to the Nephrologist and Urologist and a Biopsy and renal scan were done. No results from the biopsy but I was able to watch the Renal Scan.

Could it be causing pain? Is it a risk to keep? If they have to remove it can it be done laposcopic because I do NOT want to be cut open again..

Thanks!

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 2/14/2014 11:17 AM (GMT -7)   
Hello Coaster Lover:
 
   We have similar situations but actually reverse in order of "what came first"!
   I had metastisized cancer first (prostate) that soon blocked both kidneys. I had been hospitalized three times for kidney failure in the past - but not since June of 2012.
 
Assumming you have two kidneys but only one functioning:
   My left kidney is nearly worthless - but i have had an internal stent from the kidney to the bladder for 20-months now - even though it needs replacement every 6-months or so. The urologist is typically the person who places or replaces the stent. It is not done by major surgery - or cutting one open.
   It may or may not be a consideration for you. It's existence does not create pain (except minor pain the first few days of placement). I do believe it alleviates some potential problems of a non-working kidney ... but that's for a Urologist or other to comment on.
   My right kidney that works but with some difficulty because of the cancer blockage, has had a nefrostomy tube for the past 20-months. It is painless, the replacement needed about every 6-months is simple out-patient surgery - but it's a bit intrusive in lifestyle. The biggest mental thing to get thru is the small urinine bag around your lower leg. The tube that comes out of the back is coming from the kidney - and going to the outer bag. The only frequent maintenence items are ... emptying the bag several times a day - and getting new special dressings weekly at the hospital.
 
   My current creatine level has been from 1.7 to 2.2 for many months or longer. In June of 2012, I was admitted into the hospital with a near record 14.+ for a creatine level. The stent and nefrostomy tube were placed at that time. No dyalisis (sp?) has been required except for my first time with kidney failure in the hospital - in January 2011.
 
   Please do check the pain problem and risks with a medical pro. Don't let it slide! What I've written above may not be applicable at all - but it may be another avenue of medical help that's not too invasive.
 
Peace and wellness
 
Rob & Gizmo
 

Coaster Lover
New Member


Date Joined Feb 2014
Total Posts : 3
   Posted 2/16/2014 6:32 AM (GMT -7)   
Thanks! Biopsy results came back negative. (ya know, you never realize how much that is weighing on you until you get the call)

So now the mysterious pain keeps flaring up from the spot where the non functioning kidney is located. My Urologist says the Kidney itself should not be hurting. (But a sore lower back led to the discovery of renal disease) so I am not to sure what to think.

I don't think it is muscular because it has been very persistent and not moved around. The levels of pain go up and down unless I am laying flat in bed. It can go from flaring to a stone like pain (A quick sharp stabbing pain) down to a dull roar. Of course I can't take any anti inflammatory's because of the Kidney disease. So now to figure out the next step.

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 2/17/2014 7:57 AM (GMT -7)   
Hello again ........
 
   Would your current Urologist be offended if you got a second opinion?
 
   From my recent past, i did get a second Oncologist opinion on a proposed treatment last summer. My current Oncologist was not real familiar with one of the treatments he suggested to me. His Nurse Practitioner suggested I get a second opinion from another Oncology office that specialized in this other treatment.
   My Oncologists office cooporated completely ... and I was then able to make a choice based on the other oncologists recomendations. The choice ended up going back to my original Oncologist - and proceeding with yet another type of chemo - which, so far, has been working well.
 
   In a case closer to yours ..... my Urologist has told me he could remove the stent on my left useless kidney - and we could see what happens. By that, the worst case scenario I think would be that the stent would need to be placed again in the future.
   Please note - I have NOT had pain from that kidney. I have had small bursts of pain from the right functioning kidney ..... BUT I truly believe that pain was my fault .... not enough water ... mild dehydration.
   I would wonder if a stent (really a bi-pass) could help the non-functioning kidney in some way - so as to reduce or remove the pain. Of course, that comment is from a totally non-medical person - me!!!
 
   Keep searching for a cause ....... best wishes.
 
Rob & Gizmo
 
 
  

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 3/12/2014 7:28 AM (GMT -7)   
Hello .......
 
Just a note on nefrostomy tubes:
 
   While I hadn't had a problem with mine for 21-months or so, I had a typical replacement last week thru interventional radiology. I also had a kidney infection going on at the same time.
   After a 1500mg in solution antibiotic was given by IV, the 15-minute replacement of the tube was done. That night however, the catheter that goes into the kidney (thru my back) pulled out!
   In about 600-days of having a nefrostomy tube, this is the first time this happened. So ... the next morning, it was something of an emergency to get back into the hospital for a re-insertion of a new catheter - after yet another antibiotic by IV.
   It was done. Everything seems OK now ..... but now, I do have some questions about how long one can have a nefrostomy tube functioning. Here again, this may never ever be an option for you ..... but in case it does become an option, it's not quite as problem-free as i had thought.
 
   By the way ...... hope you may have gotten a second opinion for your situation.
 
Peace and wellness
 
Rob & Gizmo
 
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