Kidney Stones, will the pain ever stop?

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CT1984
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/5/2014 9:52 AM (GMT -7)   
Hello all. First post here. I have all sorts of problems, listed in my signature, but my concern today is the kidney stones. I had a CT done in 2010 that showed I had 7 stones, 3 in my left kidney and 4 in the right. 3 months later I passed my first stone...about 2.5mm and mostly calcium oxalate monohydrate, some calcium oxalate dihydrate and a small amout of protein. Went to the hospital, thought I was dying lol, stayed home for the rest of them, pains meds make me sick so I just went cold turkey.

From then til November 2013 I passed 4 more ranging from 3mm to 4.5mm...and since December 2013 I have passed 6 more, ranging from 1/2mm to 5mm in size, so I assume something is breaking up and those all aren't full stones. All those stones since the first one are at a lab as we speak being tested. I have had only mild pain in both kidneys the entire time, which is weird considering the first few stones I passed was 8-12 hours of the worst pain in my life.

2 weeks ago I had an ultrasound done that showed my right kidney was free and clear of all stones and the left kidney had a 6mm stone and an 8mm stone....yikes. I have another ultrasound tomorrow to see what I have passed since the last one, hopefully they both broke down to a passable size.

Has anyone else had a similar situation? Really the only thing I'm concerned about is the pain lasting almost 3 months now...and the fact that my right kidney contains no more stones but it is still equally as sore as the left. My urologist said he isn't concerned but he also said it's just muscle pain...

Thanks for listening.
Crohn's Disease - Acid Reflux - Kidney Stones - Fibromyalgia - Chronic Fatigue - Migraines - Heart Disease...and I'm only 29 haha.

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/6/2014 1:29 AM (GMT -7)   
My guess here as to why the Dr isn't worried is passing stones of that size or even multiple pieces is traumatic for the urinary system and oftentimes causes small tears as they move down and out and those jagged edges of broken off pieces cause knocks and cuts that can take time to heal. Passing pieces sometimes is more problematic then stone's in their entirety no matter how large.

The bigger problem I would be concerned with is trying to find why you keep producing stones and eliminating that if possible. Sometimes it can be as simple as dietary changes or adding a medication.

Did they not consider lithotripsy at the onset of finding all those stones? It would have eliminated the long process of your body breaking them and passing them on their own as well as stent placement could've prevented any tearing that occurred.

Good luck and hopefully your well on your way to being done with all of them.
Vickie
CHRONIC PAIN MODERATOR

CT1984
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/6/2014 5:55 AM (GMT -7)   
That's what I thought too, about the pieces causing this "strange" pain and being more problematic. I just couldn't get him to get off the muscle pain idea, Dr's see my long list of problems and are quick to brush it off as symptoms of Crohn's or Fibromyalgia. Although since I've passed more pieces since I saw him last, maybe now he'll believe me that it's kidney pain.

My Dr and I will be discussing causes and prevention when I go back to get the test results from the kidney stones we sent to the lab...if I decide to stick with this Dr that is. I'm all for a dietary change if it helps but I stay away from any meds if at all possible, I'd rather just deal with the stones myself rather than take pharmaceuticals. It's been a long battle getting off my meds, would hate to start some up again.

When they originally found 7 stones 4 years ago, I was told they were quite small and wouldn't cause a problem. So nothing was discussed about them. After I passed the first one and went to the ER, I decided I could handle 6 more by myself, so I decided that I'd wait to pass the 7 then go see a Dr to see if I am making more. I don't think I made new ones, it appears like I was just building on the 7 I had...hopefully lol.

Thanks so much. Today is the follow up ultrasound, can't wait to see what I've passed since the last one.
Crohn's Disease - Acid Reflux - Kidney Stones - Fibromyalgia - Chronic Fatigue - Migraines - Heart Disease...and I'm only 29 haha.

warrior.princess
Regular Member


Date Joined Mar 2014
Total Posts : 57
   Posted 3/7/2014 2:43 AM (GMT -7)   
I had kidney pain for over a month after I passed a stone last year
25 stay at home mom of two

Kidney issues since 2007
Diagnosed with UC june 2012

Past medications: Canasa, Rowasa, Lialda, Prednisone, Flagyl, Remicade

Out of a 2 month severe flare with current treatment: Nicotine therapy via e cig, and delzicol

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/7/2014 5:02 AM (GMT -7)   
You were lucky WP, that's actually the low end of the time frame. If you can call that kind of pain anything close to luck .

CT I hope your scan provided some good news and anxiously waiting to celebrate it with you.

I believe the biggest and best clue of course will be the pathology report to learn what,why,and how to prevent them from recurring!!

As for your Dr? Well after 25+ years working with them all I can say is they definitely are NOT All Created Equal.

That's something you will have to decide based on how you feel about the care and time and interest he has provided.
Vickie
CHRONIC PAIN MODERATOR

CT1984
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/7/2014 6:05 AM (GMT -7)   
princess, thanks for the post. I guess I must be lucky too...since all previous stones took 1-3 days of excruciating pain to pass into the bladder, then only a few days to a week of sore kidneys after. I guess my kidneys are making up for it now though lol. Definitely very comforting to hear that other people have prolonged pain after a stone.

Well nvrthesame, not sure if it's time to celebrate yet. I was looking at the screen during my ultrasound, and even though I'm not a dr, it was very easy to see the 2 stones still hanging out in my left kidney and I'm pretty sure there are still some little pieces in my right kidney, the ultrasound tech agreed...not working myself up on that one yet though til the report comes back since the first ultrasound said the right kidney was clear. But I didn't really believe that anyway because the right side still hurts.

Can't wait to get my stone reports back. I feel like a kid on Christmas morning haha.

Oh yeah, no dr is created equal for sure. I have been through quite a few dr's in my day, been seeing them since before I could talk. I finally have a good team now..primary care, GI, pain specialist, ENT, heart specialist and for the first time in my life, other than the stones, I've been quite healthy and med free for over 2 years (other than some natural medicine that isn't legal in all states so I'll keep that to myself)...so now I just need a good urologist.

This dr is young and cool, but very dismissive...like most dr's. All he did was try and give me pain meds. Told him the pain doesn't bother me, it's the cause of the pain that I'm worried about. That's when he went on to explain muscle pain to me and how to take care of it. But, I always give these dr's a few visits before I decide. Like my pain specialist, he was dismissive too, til he found out I won't take pain meds...I think he thought I was just seeking pills at first.

What does everyone do when that good ol' back pain comes on and you realize it's a stone passing? I hop in a hot bath and listen to extremely loud music. Then I just sort of zone out and wait. I passed one during spring planting 2 years ago, it took 3 days, was in the tractor planting soybeans the whole time...boy was my girlfriend mad at me on that one lol. I didn't tell anyone til it was over because I knew they would just make me go to the hospital but I wanted to work :)

Oh yeah, probably worth mentioning that I passed another stone/chunk this morning. I'm going for the record lol.
Crohn's Disease - Acid Reflux - Kidney Stones - Fibromyalgia - Chronic Fatigue - Migraines - Heart Disease...and I'm only 29 haha.

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/7/2014 6:39 AM (GMT -7)   
LOL CT, once I can manage to crawl up off the floor distraction is priceless!! I actually use it and recommend it to folks in the CP forum. I'm known there for preaching distraction versus grabbing the pill bottle,running out of meds early then begging help to get through the pain and w/d symptoms of having no meds!!!

After more then a decade and half of chronic pain I've learned to make distraction not meds my first line of defense.

I imagine being an old country girl raised on a farm in ky that tractor riding actually may have sped up the movement of those stones. As for hot water, hydrotherapy is my second and most utilized modality of therapy for pain.

Anxiously waiting with you on those report's.
Vickie
CHRONIC PAIN MODERATOR

CT1984
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/7/2014 7:01 AM (GMT -7)   
Lol glad I could knock you on the floor, hope it didn't hurt too bad.

I preach distraction too. I know it's not easy or even possible for everyone but it has worked for me better than any morphine, percocet or dilaudid every did. Also had a bit of a pill problem in my teenage years due to dr's telling me to take vicodin and soma for the pain...so no thanks to that crap...or should I say poison.

Same here, chronic pain since I was a kid. I used to go play with my GI Joes or tractors when I was not feeling well, now I work on my house or play with the real tractors when it comes on. Works like a charm. I just hate being slowed down by my illnesses, it's weird in a way, I feel like crap but that gives me motivation to get up and go do something to take my mind off it.

Breathing techniques to control your heart rate is an amazing tool as well, I use that almost daily.

Oh great, it's always nice to meet other country folk on the internet...it doesn't happen too often. Your family still farming at all?

Oh yeah, bouncing around in the tractor definitely got em going. Farmers and truck drivers are quite susceptible to stones for that reason.

Reports...waiting is always the worst part...Monday can't come soon enough lol.
Crohn's Disease - Acid Reflux - Kidney Stones - Fibromyalgia - Chronic Fatigue - Migraines - Heart Disease...and I'm only 29 haha.

CT1984
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/10/2014 6:02 AM (GMT -7)   
Well, some good news for once, I woke up this morning with no pain, stiffness, soreness..nothing. Hopefully that was it...til the next one.
Crohn's Disease - Acid Reflux - Kidney Stones - Fibromyalgia - Chronic Fatigue - Migraines - Heart Disease...and I'm only 29 haha.

Jean luc
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/10/2014 5:03 PM (GMT -7)   
Will the pain ever stop? Magnesium citrate is used as a cathartic laxative....It provides a soluble form of magnesium which can help get rid of urinary calcium and also has citrate which inhibits stone formation.

two tablespoonsful of mag citrate twice should give you relief from stone formation. Google magnesium citrate in treating kidney stones. you're welcome. Spock would be proud JL

Jean luc
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/10/2014 5:07 PM (GMT -7)   
correction two tablespoonsful of magnesium citrate twice daily. 98 cents for a 10 oz bottle at walmart \V/ JL
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