Posted 12/24/2014 12:01 PM (GMT -7)
My wife got a liver transplant on April 3rd. We, luckily, already lived within an average walking distance to some of the brightest minds in medicine, and two of the largest transplant centers in the PNW.
She was diagnosed with hepatic renal failure and beat the 70-80% mortality rate and fought through to a liver transplant. We avoided a kidney and were lucky as she was able to be weaned off dialysis within a week post transplant.
Her kidneys do continue to struggle a bit, though. As the doc said 'less than desirable.' BUT, they are working.
Prograf, her main med, is very taxing on kidneys. As she has now developed a kidney doc, who was involved pre-transplant, who knows pretty much everything that went on during her main illness. He has added back Calcium Acetate to see if that helps the Prograf damage.
She is 41 now, BTW. Would have never made it but for a lot of luck and timing. And guess work, for the most part!
So, now we are looking at a long haul of waiting out the kidneys and knowing there is a very high chance of needing a kidney in the future, and eventual dialysis again (she is not looking forward to that, it really plays havoc with you.)
Just wanted to hop in, say hi, and know we will be here time to time. Considering what we went through so far, I know that we can be very helpful to others as we also lean on this forum.
Happy holidays to all here, hope that they are good ones, as this is the first season we have in our new life. Post Transplant.
Funny thing, after a liver, neither one of even blinks an eye at a kidney. It's more like, OK, and that is a bad thing? Just a blip, nothing like that liver ordeal!!