Kidney transplant and problems

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Fuzzyducks
New Member


Date Joined Jul 2015
Total Posts : 3
   Posted 7/23/2015 4:26 PM (GMT -7)   
Hi new here but was wondering if anyone is having same problems I am. I went to er Feb 14th 2014 with headache ended up in hospital 1 month and 3days they found me to have good pasture syndrome anyway they did transplant on 20th of August 2014 my daughter was donor perfect match kidney seems to be going good but I now have depression, anxiety, RA, osteopenia and osteoarthritis in pain most the time and the depression is pretty bad. Can anyone offer any help or am I only one having these issues?

nategerdney
Regular Member


Date Joined Jul 2014
Total Posts : 77
   Posted 7/24/2015 8:31 AM (GMT -7)   
A transplant is a massive physical and psychological trauma, and you cannot count on the hospital to recognize this. A great many people experience depression after transplant, and it should be expected. The anxiety too, for the same reasons.

Now, I don't know how to handle the osteopenia and osteoarthritis. I think those need to be addressed with a specilaist separately. You should try to find yourself a good psychologist, and open up to her/him about everything you feel. Vent your feelings about the transplant. You need validation right now.

I've had two transplants in my life, one at 12 years old, and another at 17 years old. Now, at 30, I'm waiting on another. My feelings weren't given any credibility after either of them, and a few years ago I cam within minutes of committing suicide. That is how serious the trauma is. No, you are by no means the only person who feels the way you do.

The medical system fails both children and adults. You should reach out to other people - friends, family, and a therapist, and express to them how you have experienced what's happened. Find something you are passionate about to devote your identity to, or you run the risk of believing you're only alive to feel pain. That's what nearly destroyed me.

Fuzzyducks
New Member


Date Joined Jul 2015
Total Posts : 3
   Posted 7/24/2015 9:26 AM (GMT -7)   
Thank you so much for your reply. So how do u control ur depression? I have been thinking about seeing my family Dr about this but have had so many look at me like I am crazy just been putting it off. None of my family or friends never been around anything like what I am going thu so no one understands what I am going thu. But I will look for a Dr to go talk to and get everything out. And again thanks and hope u get ur transplant and everything goes good for you

nategerdney
Regular Member


Date Joined Jul 2014
Total Posts : 77
   Posted 7/24/2015 9:47 AM (GMT -7)   
Your family and friends don't need to have been through similar experiences. They only need to allow you to open up to them, vent your feelings, and give you some validation and support. I know you're overwhelmed right now, but try not to overwhelm them. Take it slow, step by step. You are welcome to talk to me more as well.

And, again, you'll also need to find a good psychologist - not a psychiatrist and not a general physician - and don't let a doctor just give you medication for depression. What you're dealing with is a trauma and identity issue, and if they don't recognize that much, find someone who does.

Those people who look at you like you're crazy and 'putting it off' (although I'm not quite sure what that one refers to) are actually doing tremendous harm. YOU ARE NOT CRAZY. You've been through an incredibly stressful ordeal. You may want to find someone who addresses trauma specifically.

I'm going to see my psychologist again next Tuesday, and it's possible, although I cannot promise anything, that she may know someone. Where do you live? That chance may depend a lot on location. Keep reminding yourself, you're not crazy. You've been through a lot. And, importantly, find something you enjoy to do every day. It really helps.

nategerdney
Regular Member


Date Joined Jul 2014
Total Posts : 77
   Posted 7/24/2015 9:56 AM (GMT -7)   
Oh, I forgot - you asked me how I control my depression. Well, for many years, I didn't. The thing about depression, that I am still learning, is that it's not something that can just be drugged and talked out of. It takes the reviving of a strong identity and sense of purpose inside you to pull out of, and it's not an easy process. This is where validation from others, and a sense of purpose from inside, is absolutely essential. I'm still working on that. My writing helps. I write stories for myself, as well as participate in forums like this. I'm trying to work and research towards a transplant (and on making it the last one) so that I can finally have enough energy to work and support my family, as my parents are going to be too old in a decade or two. I work on becoming an environmental scientist, which was always my passion. Finding a passion is important. What no doctor will tell you is that, a transplant is an early step in recovering. It is not the last step at all. You must rebuild yourself.

Fuzzyducks
New Member


Date Joined Jul 2015
Total Posts : 3
   Posted 7/24/2015 12:44 PM (GMT -7)   
Thanks so much and I live in snyder tx a really small town about 86 miles south of Lubbock. And I am starting to think living here where I don't have any family beside my husband I don't know but 1 person is alot of why I feel so tired and not wanting to do much comes from just feel alone all the time. But I do see where finding something I like to do every day would help out alot. And talking on here seems to help this is first place I have found to talk to people who have been thu same thing I am going thu.

nategerdney
Regular Member


Date Joined Jul 2014
Total Posts : 77
   Posted 8/6/2015 12:14 PM (GMT -7)   
You can talk to me again if you need to. My email is <nathanarmory@gmail.com>
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