Biopsy Results - How Long Did You Wait?

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aouaj04
New Member


Date Joined Oct 2014
Total Posts : 6
   Posted 6/21/2016 1:53 AM (GMT -7)   
Hi

I had a biopsy done on some projections that were found outside my kidney leading to my tubes on the 11th May, they were found whilst removing a kidney stone.

I haven't heard anything yet, however I do have a follow up with my consultant on the 30th June, one doctor told me I will most probably hear then.

I am so anxious to know if it is good or bad news, and the wait is unbearable. I was under the impression no news is generally good news, but not so sure. I have contacted the consultant secretary twice and she has not got back to me at all.

A few people have advised with kidney biopsies this length of time can be normal. I am just curious how long did you wait? Was it good or bad news? I don't have a problem with you telling me bad, as this is the reason I am asking - I want to prepare myself either way.

Kind regards

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 296
   Posted 6/24/2016 12:25 PM (GMT -7)   
I had a lesion removed two days ago and I was told the pathology would be completed in a week. Six weeks sounds like a long time.

aouaj04
New Member


Date Joined Oct 2014
Total Posts : 6
   Posted 6/24/2016 1:10 PM (GMT -7)   
Thank you x Hope your results come back ok.

Good luck

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 296
   Posted 6/25/2016 5:00 AM (GMT -7)   
Thanks. The difference between us is that I had the lesion completely removed surgically, so even if the pathology comes back as malignant, there is still very little chance that any cancer has spread or that it will recur.

aouaj04
New Member


Date Joined Oct 2014
Total Posts : 6
   Posted 6/25/2016 6:51 AM (GMT -7)   
Yes - mine were found whilst removing a kidney stone and also as an investigative as to why i keep getting stones, so they were not expected However he did say they were small, so maybe they are in no rush x I only have 5 days to wait now, so I guess I shall just have to be patient.

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 296
   Posted 7/20/2016 11:54 AM (GMT -7)   
How did the biopsy turn out?

aouaj04
New Member


Date Joined Oct 2014
Total Posts : 6
   Posted 7/21/2016 2:03 AM (GMT -7)   
Unfortunately it came back inconclusive - he is not sure if it is a low grade cancer or benign. So they are going to do active monitoring - ureteroscopy in November and then scans every six months. He said he lazered the whole area so we are hoping he may have got it all anyway. Thank you x

Typical though I spent all that time worrying and when I went to my appointment he told me about the kidney stone removal and that it was successful and so everything was fine and he didn't need to see me anymore. I asked him what about my biopsy results - he totally forgot he had even done a biopsy and had to leave the room to read the report. I didn't know whether to laugh or cry.

I wish I knew either way - but at least it wasn't the worst news . x

How are you getting on?

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 296
   Posted 7/21/2016 5:09 AM (GMT -7)   
I had active monitoring done for 2-1/2 years before the doctors decided the lesion on my kidney had grown enough to warrant taking some action. On June 22nd, I had a robotic assisted laparoscopic partial nephrectomy. The surgeon removed an area that was 3cm x 2cm x 2cm, so quite small. They tested it there to ensure that they had taken out the entire lesion, and they had. I believe the term of art is no negative edges. I had the operation at 3PM on the 22nd and was discharged at 1:30PM on the 23rd. Very fast. The pathology report came a week later and it confirmed that it was something called chromophobe renal cell carcinoma. It's a form of the disease that only occurs about 5% of the time, so pretty unusual. It's a very, very non-aggressive form. It rarely spreads beyond the kidney (and mine hadn't) and it rarely comes back. But, just like you, I'll be having scans every six months for a while. And that's fine with me. I'd rather find out about something early enough to do something about it.

Just so you now, when I started this whole thing, it was December, 2013. routine physical uncovered microscopic amounts of blood in my urine. So my primary doctor had me get a scan, thinking it was a kidney stone. It turned out to be a lesion. I was referred to a urologist, who said that the standard of care for something that small (it was 1.5cm at the time) was active monitoring. So, I had a very similar circumstance to yours.

If you haven't already, it would probably be a good idea to get a referral to a urologist who specializes in cancers of this type. That's not to say that you definitely have it. But a regular urologist will see only a few cancer cases, seeing instead probably a lot of prostate issues in men and general types of urological problems in everyone else, a urological oncologist will know a lot more about kidney issues like ours.

The very good news about your situation is that what you're dealing with is so small that even if it is malignant, the technology that's available now is simply amazing and results in a total cure in about 98% or 99% of all cases that are caught at the stage we're both in.

aouaj04
New Member


Date Joined Oct 2014
Total Posts : 6
   Posted 7/21/2016 5:18 AM (GMT -7)   
Thank you so much for that advice. I am so pleased you are doing well.

I will certainly look into a urologist that specialises in cancer - but unfortunately not sure if we get a lot of choice here in the UK on the NHS, but it is worth looking into.

I do hope that our future scans prove to be positive xxx
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