New member here, and I had some questions (Forgive me, because this is a little long).
First some background. In March of this year (2016) I was diagnosed with a growth on my right Kidney (I also suffer from Kidney Stones -- "A Great Many, Bilateral"
-- Last count: 30+). After seeing a Urologist who reviewed my CT Scans (one w/o Contrast & one w/Contrast) he related that in his professional opinion that the growth was likely a cancerous tumor (80% chance in his opinion). We discussed options, which really came down to two: Leave it and let it continue to grow or remove it through surgery. After discussing both options, I decided upon surgery which was conducted on 20 May 2016...
The Surgery was a Partial Nephrectomy of the Right Kidney, and after surgery I experienced a lot of pain, which I expected due to the nature and area of the surgery. After spending 3-days in the hospital I was sent home to recover and heal.
Three weeks later I went back for a post-op appointment with the Urologist, and he related that the tumor had been cancerous. I then told him that I was still experiencing a lot of Abdominal Pain and swelling (Went from 36" waist to 42" waist...and lost 14 lbs) , as well as pain in my right testicle. The Urologist then, in short, stated that I could not be -- was not -- experiencing abdominal pain or swelling "as it was impossible for the type of surgery that he performed, a Partial Nephrectomy, to cause anything like this;"
he also related that any testicle pain would "end soon."
He then said he wanted to see me in 6-months (December) and promptly ended the visit by walking out of the room and into an adjacent room to see another patient. And during the entire visit he did not even examine me...did not even look at the surgery incisions to see how they were healing, to even see if I was swollen or if -- if he had touched me -- if I felt pain.
Anyway...I made an appointment with my PCM because I was (and still am) in a lot of pain. My PCM did a thorough examination of me and determined that I wasn't loosing my mind (Which I was beginning to wonder about
, after my visit with the Urologist...). In the time since then I have seen by a GI Doctor, who ordered a third CT Scan, and a different Urologist. The third CT scan did not show anything out of the ordinary (ie: Nothing left over/inside from the surgery and no scarring) and both the GI and new Urologist Doctors have both concurred that I have permanent nerve damage from the surgery.
I'm living in constant pain, I'm always exhausted, and I have frequent bouts of nausea; I have to lay down in a recliner several times during the day to recover from the pain and exhaustion, and I sleep there at night. I can't bend over, kneel, twist without increasing the pain. I can only stand for about
10-minutes and can only sit upright for about
20-minutes without hurting even more. Nothing and nobody can touch my abdomen or right testicle without causing me even more pain than I'm already in. I'm taking Hydroco/Apap (10/325; every 6-hours...) for pain that just takes the edge off and I absolutely HATE taking it, and Transderm Scop for Nausea...and the new Urologist has given me Amitriptyline in the hope that it will help with the testicular pain.
Now my PCM is considering sending me to a Pain Manager....and I'm at my wits end. I'm just very thankful that I'm married to a wonderful woman who's there for me...because I don't know what I'd do otherwise. Heck, at this point I wish I'd have left the Tumor in, but that's all "Water Under the Bridge"
So...here's my questions: Has anyone else had something like this happen to them or know of someone else who has? Or am I the only one who's come out of surgery and experienced pain like this?
Thanks for reading...
...I just needed to get this off my chest...
~ Nadrakas (ie: Fred)
(Edited for misspellings and mistakes...)
Post Edited (Nadrakas) : 10/19/2016 6:47:28 PM (GMT-6)