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HavingFunYet?
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/19/2017 5:37 PM (GMT -7)   
I am not new to Healingwell, although I left for a long time. I have stage 5 kidney disease, and having second thoughts about my Kidney Doctor. He didnt even give me the news, my family doctor did. Once I got over the initial shock of how fast (6 yrs since orig diagnosis), and read online that I should be reducing so much more in my daily renal diet. Protein?? Phosphorus and Potassium? Should he not have sent me to a dietician, like he did 6 yrs ago? Or perhaps it's because I have so many other maladies..like Type 2 diabetic, RA? Maybe I am just not treatable anymore? I swear, that I think I am at death's door from what I've been reading tonight.

If you have read this far, thank you smile

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15321
   Posted 9/20/2017 10:14 AM (GMT -7)   
HavingFunYet, are you on dialysis? The reason I am asking is, my dad had kidney issues & had to have a heart cath done prior to open heart surgery. The dye used finished his kidney function off & he was put on dialysis. We were aware this would happen so we were not surprised.

In all honesty, I would find another kidney specialist like now. It takes a bit to get in with a new one & if you have been staged correctly, you need attention now, not later. From what little info you have posted, I do not feel that your dr is looking out for your best interest. Please get a new dr to take care of you.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

HavingFunYet?
New Member


Date Joined Sep 2017
Total Posts : 2
   Posted 9/21/2017 4:53 PM (GMT -7)   
Thank you stray dog. I am going back to my family doctor to get her to set me up with the Kidney Care Unit at our local hospital, and she too, was surprised that the Kidney doc hadn't done that back when I was diagnosed. Every 6 mnths I see him, and he always says there is no change, then I got knocked for a loop when I went to my family doc for something else, and she was the one who told me how bad I have gotten. Have a wealth of blood testing next week, hopefully to retain a current GFR report so that I have some numbers for the dietician. I am frightened, but a friend gave me a xanax this afternoon, so I am more focused tonight.
I am 67 yrs old, and have a close knit family, but have not disclosed this terrible news yet. I want to know more before I do. Thank you for responding.

No, I am not on dialysis yet, and was told today, that at 20% I am stage 4, sorry for the error.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15321
   Posted 9/21/2017 5:11 PM (GMT -7)   
I urge you to go to the MayoClinic.com & type in kidney failure. They have a wonderful site that explains everything from start to finish. You really need to educate yourself about your condition. By all means get in to the hospital you mentioned. You need treatment, but you also need to learn about kidney disease. Drs simply do not have the time to educate a patient any more, they are far too busy.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 296
   Posted 9/22/2017 5:07 AM (GMT -7)   
Hi. I apologize. I don't come to this board as often as I have in the past.

Get yourself to another kidney doctor. My mother-in-law, age 91, is in a similar position to you, although her CKD came on a lot more suddenly than yours did. We decided to take her away from her primary care physician (a man who seemingly ignored worsening numbers pointing to kidney problems) and instead brought her to UCSF, a teaching hospital in the San Francisco, where she has been receiving excellent care from two different nephrologists for the past six months. Local hospitals are fine for run-of-the-mill conditions. But for something like this, I think you would be much better served to go to a large teaching hospital.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15321
   Posted 9/22/2017 10:06 AM (GMT -7)   
Bay Area Guy is absolutely correct. If you are a stage 4, your GP is not who you need to be monitoring your kidney situation. You need the best specialist you can find. I am really not sure how you are able to function being a stage 4 you should be on dialysis.

Please let us know the outcome. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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